Connect with us

#NNPA BlackPress

The Sickle Cell Warriors Convention

NNPA NEWSWIRE-The Consortium functions as an organizing entity, allowing this diverse group of stakeholders to identify, prioritize, develop, and execute solutions for patient-identified needs and gaps within the sickle cell community.
The post The Sickle Cell Warriors Convention first appeared on BlackPressUSA.

Published

on

Dr. Lakiea Bailey has spent over a decade bringing attention and resources to those living with rare diseases. A prominent advocate and research scientist with a Ph.D. in Molecular Hematology and Regenerative Medicine, Dr. Bailey was diagnosed with sickle cell disease at age three and has dedicated her life to supporting and empowering the sickle cell community.

Despite the devastating symptoms of sickle cell, Dr. Bailey was determined to complete her educational goals. At the completion of her doctorate training, she founded and began working as the Executive Director of the Sickle Cell Community Consortium, a coordinated network of sickle cell community-based organizations (CBOs), patient and caregiver advocates, community partners, and healthcare/research advisors.

The Consortium functions as an organizing entity allowing this diverse group of stakeholders to identify, prioritize, develop, and execute solutions for patient-identified needs and gaps within the sickle cell community.

Bayou Beat News spoke with Dr. Bailey during a recent interview where she discussed the Sickle Cell Consortium’s 11th Annual Warriors Convention, the importance of returning the conference to Atlanta, Georgia and the recent surge of sickle cell awareness in television and mainstream media.

When asked about her excitement for this year’s convention, Dr. Bailey said, “I am most excited about the children. We have tracks for all age groups and a free nursery for babies between 18 months and four years. We partner with an organization licensed to take care of the young ones, and we have activities, education, and a STEM room available for the children.”

This year’s highly anticipated Sickle Cell Warriors Convention will be hosted at the Atlanta Westin Perimeter North Hotel from July 17 to July 21, after last year’s success in Houston, Texas.

Excitement surrounds the convention, partly due to Atlanta’s recent establishment of a first-of-its-kind sickle cell sanctuary, thanks to the Sickle Cell Foundation of Georgia.

“They are one of our partners that has opened that up locally. They have so much that they’re planning to do and there are so many services that can be accessed free of charge. It really does provide a place for warriors to go to seek alternative treatment in care. There’s the hospital of course, but we all hate to go, the sanctuary is someplace you can look forward to going to also get different types of treatments and care,” Dr. Bailey noted.

But deciding to bring the convention to Atlanta wasn’t an overnight decision.

“It’s a vote. The sickle cell community votes two years out where we’re going to go, and it moves around based on where that vote lands,” she explained. “We are excited to return to our home city of Atlanta. This year’s theme, ‘Lead the Way: From Patient to Powerhouse,’ embodies the journey and transformation of those affected by sickle cell disease.”

The convention promises to be a unique and comprehensive event designed entirely by and for the sickle cell patient and family community. It will feature the reintroduction of the Sickle Cell Consortium’s Warrior University classes, a faith-based brunch, a family game night, a campus carnival, and dedicated sessions for various groups including men, young adults, caregivers, and newly diagnosed families. The Expo, scheduled for Saturday from 12 to 4 p.m., offers free booths for those working on sickle cell treatments, therapies, and technologies.

“If they have an app or a food plan or dietary options, whatever it is they’re doing in the sickle cell health space, they can have a free booth at the expo. We want to ensure that everyone, not just those with sickle cell disease, can attend and learn. The more people we can educate, the more awareness we can bring to our Sickle Cell community,” Dr. Bailey emphasized.

To ensure accessibility, all sickle cell patients, warriors, and caregivers will benefit from a scholarship registration rate of $25 for both in-person and virtual attendance, compared to the standard registration fee of $180.

“The $25 scholarship rate covers everything, including all meals, special activities, and tickets to various events,” she emphasized. “There’s plenty of scholarships, that we work very hard to make sure this is as affordable as possible for this community.”

Additionally, there is a Family Max-Out rate of $100 for large families. Scholarship assistance for hotel and lodging costs is also available.

The Consortium is expecting record numbers this year thanks to the new Netflix series Supacell, whose premise is based on the discovery that having sickle cell gives you superpowers. Dr. Bailey also cites the younger generation being more vocal about sickle cell through social media.

“I think it’s fantastic to see us being discussed,” she said. “Although, it’s unfortunate, for example, with the Saturday Night Live that happened a few months ago when misinformation is pushed out on a big network in a big way. That episode had a lot of bad information about curative therapies and gene therapy. When that happens, it’s unfortunate, but it gets people talking. For a long time, people thought sickle cell wasn’t a thing anymore because no one was talking about it. So I’m of the opinion that anything that gets people talking is a good thing, even if we have to then go back and correct misinformation.”

Continuing the effort to correct misinformation, Dr. Bailey emphasizes that you do not need to be a sickle cell warrior, patient, or caregiver to attend the convention, and she stresses that you won’t want to miss this year’s spectacular workshops and events.

“We do have a few surprises planned, but that’s why they are surprises,” she says. “I can’t reveal too much about what we’re working on, but various people are working diligently to make this convention the best one yet.”

For more information and to register for the convention, visit sicklecellconvention.org If you are seeking a free vendor booth at the expo, please visit sicklecellconvention.org/expo.

The post The Sickle Cell Warriors Convention first appeared on BlackPressUSA.

Continue Reading
Click to comment

Leave a Reply

Your email address will not be published. Required fields are marked *

#NNPA BlackPress

Black Artists in America, Installation Three Wraps at the Dixon Gallery and Gardens

TRI-STATE DEFENDER — With 50+ paintings, sculptures and assemblages, the exhibit features artists like Varnette Honeywood from Los Angeles, whose pieces appeared in Bill Coby’s private collection (before they were auctioned off) and on “The Cosby Show.” Also included are works by Alonzo Davis, another Los Angeles artist who opened one of the first galleries there where Black Artists could exhibit. 

Published

on

By

By Candace A. Gray | Tri-State Defender

The tulips gleefully greet those who enter the gates at the Dixon Gallery & Gardens on an almost spring day. More than 650,000 bulbs of various hues are currently on display. And they are truly breathtaking.

Inside the gallery, and equally as breathtaking, is the “Black Artists in America, From the Bicentennial to September 11” exhibit, which runs through Sunday, March 29. This is the third installment of a three-part series that started years ago and illustrates part of the Black experience through visual arts in the 20th century.

“This story picks up where part two left off,’’ said Kevin Sharp, the Linda W. and S. Herbert Rhea director for the Dixon. “This era is when we really start to see the emergence of these important Black artists’ agency and freedom shine through. They start to say and express what they want to, and it was a really beautiful time.”

With 50+ paintings, sculptures and assemblages, the exhibit features artists like Varnette Honeywood from Los Angeles, whose pieces appeared in Bill Coby’s private collection (before they were auctioned off) and on “The Cosby Show.” Also included are works by Alonzo Davis, another Los Angeles artist who opened one of the first galleries there where Black Artists could exhibit.

“Though [Davis] was from LA, he actually lived in Memphis for a decade,” said Sharp. “He was a dean at Memphis College of Art, and later opened the first gallery in New York owned and operated by black curators.”

Another featured artist is former NFL player, Ernie Barnes. His work is distinctive. Where have you seen one of his most popular paintings, Sugar Shack? On the end scene and credits of the hit show “Good Times.” His piece Saturday Night, Durham, North Carolina, 1974 is in this collection.

Memphis native James Little’s “The War Baby: The Triptych” is among more than 50 works featured in “Black Artists in America, From the Bicentennial to September 11” at the Dixon Gallery & Gardens, the final installment of a three-part series highlighting the impact and evolution of Black artists through 2011.

Memphis native James Little’s “The War Baby: The Triptych” is among more than 50 works featured in “Black Artists in America, From the Bicentennial to September 11” at the Dixon Gallery & Gardens, the final installment of a three-part series highlighting the impact and evolution of Black artists through 2011.

The exhibit features other artists with Memphis ties, including abstract painter James Little, who was raised in a segregated Memphis and attended Memphis Academy of Art (before it was Memphis College of Art). He later moved to New York, became a teacher and an internationally acclaimed fixture in the art world in 2022 when he was named a Whitney Biennial selected artist at the Whitney Museum of American Art in New York.

Other artists like Romare Bearden, who had a Southern experience but lived up North, were featured in all three installments.

“During this period of time, he was a major figure,” said Sharp. “He wrote one of the first books on the history of African American art during a time when there were more Black academics, art teachers, more Black everything!”

Speaking of Black educators, Sharp said the head curator behind this tri-part series and Dixon’s partner in the arts is Earnestine Jenkins, Ph.D., an art history professor at the University of Memphis, who also earned a Master of Arts degree from Memphis State University (now UofM).  “We began working with Dr. Jenkins in 2018,” he said.

Sharp explained that it takes a team of curators, registrars, counterparts at other museums, and more, about three years to assemble an exhibit like this. It came together quite seamlessly, he added. Each room conjured up more jaw-dropping “wows” than the one before it. Each piece worked with the others to tell the story of Black people and their collective experience during this time period.

One of the last artists about whom Sharp shared information was Bettye Saar, who will turn 100 years old this year. She’s been working in Los Angeles for 80 years and is finally getting her due. Her medium is collages or assemblages, and an incredible work of hers is on display. She’s married to an artist and has two daughters, also artists.

The exhibit catalogue bears some of these artists’ stories, among other scholarly information.

The exhibit, presented by the Joe Orgill Family Fund for Exhibitions, is culturally and colorfully rich. It is a must see and admission to the Dixon is free.

Visit https://www.dixon.org/ to learn more.

Fun Facts: An original James Little design lives in the flooring of the basketball court at Tom Lee Park, and he makes and mixes his own paint colors.

Continue Reading

#NNPA BlackPress

Grief, Advocacy, and Education: A Counselor Reflects on Black Maternal Health

SAN DIEGO VOICE & VIEWPOINT — Last month healthcare leaders, birth workers, and community members gathered to honor the legacy of Charleston native Dr. Janell Green Smith, a nurse-midwife and doctor of nursing practice who died in January from childbirth complications. She had participated in more than 300 births and specialized in helping Black women give birth safely.  

Published

on

By

By Jennifer Porter Gore | Word-In-Black | San Diego Voice and Viewpoint

In 2024, the number of U.S. mothers who died as a result of pregnancy or childbirth dropped compared to 2023. But while slightly fewer Black mothers died that year, they still had three times the mortality rate of white women.

South Carolina’s rates of maternal deaths outpaced even the national rates. In fact, the state’s overall rate of maternal deaths between 2019 and 2023 was higher than all but eight states and the District of Columbia.

Last month healthcare leaders, birth workers, and community members gathered to honor the legacy of Charleston native Dr. Janell Green Smith, a nurse-midwife and doctor of nursing practice who died in January from childbirth complications. She had participated in more than 300 births and specialized in helping Black women give birth safely.

Her death shocked the community and her colleagues who are determined to address concerns about Black maternal health. The event also covered the importance of protecting mental health during grief and of men’s role in solving the maternal health crisis.

As both a therapist and a father, Lawrence Lovell, a licensed professional counselor and founder of Breakthrough Solutions, discussed ways the event’s attendees could process their grief over Green Smith’s death. He also shared ways male partners can advocate for women’s maternal health during pregnancy and childbirth.

Lovell spoke not just as a therapist but also as a father whose own family had briefly crossed paths with Green Smith. The event, he said, emerged organically from a moment of collective mourning.

Despite the grief, “it was still, like, a really beautiful event, a much-needed event, and it almost felt like we were all giving each other a collective family hug,” says Lovell.

His connection to Green Smith, Lovell says, was brief but meaningful during his wife’s pregnancy with their second child. Green Smith was practicing at the same birthing center where they had their child. She began practicing in Greenville a short time later.Even that short connection carried significance for Lovell, given the small number of Black maternal health professionals.

Lovell did not initially plan to become a mental health practitioner; he chose the career path after graduating from college, when someone suggested he consider psychology. His interest deepened when he noticed how few Black men work in mental health.

“Being Black man and playing football in college, there weren’t a lot of people that look like me talking about mental health,” says Lovell. “[I wanted] to give people that look like me an opportunity to work with someone that looks like them.”

Working with Expectant and New Parents

Lovell often counsels couples preparing for parenthood by, helping partners understand what a successful pregnancy, childbirth, and postpartum recovery look like. That often means helping women manage postpartum depression.

As a man, Lovell says, it’s “humbling” that a woman “just trusts me enough to work with me through their pregnancy or their postpartum recovery.”

In his work, Lovell has noticed how few men understand pregnancy before they experience it with their partner. Because early pregnancy symptoms are often invisible, he says, men may underestimate how much support a mom-to-be actually needs.

“Sometimes they may not realize they don’t know much about pregnancy and what to expect in those three trimesters,” Lovell says. “I tell a lot of the men that just because you can’t see [she’s pregnant] doesn’t mean that she won’t appreciate your intense support in that first trimester.”

Education about pregnancy and postpartum recovery, he says, can change how men support their partners.

Teaching Advocacy in the Delivery Room

Another major focus of Lovell’s counseling is preparing men to advocate for mothers during labor.

“Helping men understand what pregnancy looks like: what delivery is going to look like, and what are the realistic expectations that I should have of myself in postpartum,” he says.

Lovell encourages partners to be honest about their expectations for what will happen during delivery. He helps them prepare for the big day by discussing the birth plan and knowing how to quickly recognize problems. Clear communication, he says, prevents misunderstandings.

He regularly trains men to ask their partners detailed questions about their expectations during and after pregnancy. Advocacy in medical settings can be especially important and requires attention to details the mother may not be able to address.

“It’s always important to fine-tune things and truly understand what helps your partner feel most supported,” Lovell says. “Instead of guessing, you should ask.”

Lovell recalls a moment during the birth of his first child when he had to take that role.

During the delivery, “I felt like something wasn’t as sanitary as I’d like it to be,” he says. “I asked, ‘Hey, can you switch those out? Can you change your gloves?’”

Lovell has a succinct but powerful message he regularly shares with clients’ families, and he shared it with attendees at last month’s event.

“Just to believe women,” he says. “I’ve worked with different couples, and sometimes I’m not really sure that there’s enough empathy from the men.”

That includes how women express pain.

“If a woman says, ‘my pain is at a nine,’ just because how you would express yourself at a nine is different than how she’s expressing herself at [that level] doesn’t mean you shouldn’t believe her,” he says.

Empathy, he says, can change outcomes far beyond the delivery room.

“We’ve got to believe women when they’re talking about their experiences and their feelings and their pain,” he says. “I think there’s a lot that we can prevent if we empathize better.”

Continue Reading

#NNPA BlackPress

Future of Florida’s Black History Museum in Limbo

JACKSONVILLE FREE PRESS — A proposal sponsored by Tom Leek, a Republican from Ormond Beach, has now passed the Senate in back-to-back legislative sessions. But the House version, filed by Kiyan Michael, a Jacksonville Republican, did not receive final approval in either year, effectively stalling the effort.

Published

on

By

Jacksonville Free Press

Plans to establish a long-awaited Black history museum in Florida are once again on hold after legislation needed to advance the project failed to clear the state House for a second consecutive year, despite repeated approval in the Senate.

A proposal sponsored by Tom Leek, a Republican from Ormond Beach, has now passed the Senate in back-to-back legislative sessions. But the House version, filed by Kiyan Michael, a Jacksonville Republican, did not receive final approval in either year, effectively stalling the effort.

Under Florida law, identical or similar bills must pass both chambers before heading to the governor’s desk. Without House approval, the legislation has been unable to move forward, leaving the project in limbo. Long journey, contested location.

The proposed museum, formally known as the Florida Museum of Black History, has been years in the making, with lawmakers and community leaders framing it as a long-overdue institution to preserve and showcase the state’s African American heritage .A central point of contention has been the museum’s location. St. Augustine — widely recognized as the nation’s oldest city and a site deeply tied to both slavery and early Black history — emerged as the leading contender. Supporters argue the city’s historical significance makes it a natural home for the museum. However, competing interests and regional considerations have fueled debate, slowing consensus among lawmakers.

While the Senate-backed measure has consistently advanced, the lack of alignment in the House has underscored ongoing divisions about how and where the project should take shape.

The holdup in the Florida House appears to be less about opposition to the museum itself and more about a combination of procedural bottlenecks, unresolved structural issues, and lingering disagreements over how the project should be formalized and governed.

Despite the legislative setbacks, Republican Gov. Ron DeSantis has publicly voiced support for the museum. Speaking last month during the unveiling of a statue of abolitionist Frederick Douglass in St. Augustine, DeSantis said the project would move forward “one way or another,” signaling an intent to see the museum built regardless of legislative hurdles.

The anticipated museum has already cleared several hurdles. St. Johns County signed an agreement last year with Florida Memorial University to use the land that once housed its campus last year’s legislative session netted $1 million in funding for St. Johns County to work on planning and design for the museum. However, its anticipated that a million $3 million is needed.

Still, without statutory approval to finalize key components — including governance, funding mechanisms and site selection — the project remains largely conceptual.
With the House bill failing again, the timeline for the museum’s development is unclear. Lawmakers could revisit the proposal in the next legislative session, but any further delays risk pushing the project back several more years. Advocates warn that continued inaction could stall momentum for a museum many see as critical to telling a fuller, more accurate story of Florida’s past. For now, the effort remains paused — caught between political support at the top and legislative gridlock within the Capitol.

Continue Reading

Subscribe to receive news and updates from the Oakland Post

* indicates required

CHECK OUT THE LATEST ISSUE OF THE OAKLAND POST

ADVERTISEMENT

WORK FROM HOME

Home-based business with potential monthly income of $10K+ per month. A proven training system and website provided to maximize business effectiveness. Perfect job to earn side and primary income. Contact Lynne for more details: Lynne4npusa@gmail.com 800-334-0540

Facebook

#NNPA BlackPress1 month ago

Reflecting on Black History Milestones in Birmingham AL

Bay Area1 month ago

CITY OF SAN LEANDRO STATE OF CALIFORNIA PUBLIC WORKS DEPARTMENT ENGINEERING DIVISION NOTICE TO BIDDERS FOR ANNUAL STREET OVERLAY/REHABILITATION 2019-21 – PHASE III

Activism1 month ago

Oakland Post: Week of February 18 – 24, 2026

Activism1 month ago

Oakland Post: Week of February 25 – March 3, 2026

#NNPA BlackPress1 month ago

PRESS ROOM: NBA Hall of Fame Nominee Terry Cummings Joins 100 Black Men of DeKalb County to Launch Victory & Values Initiative

#NNPA BlackPress1 month ago

Trump’s MAGA Allies are Creating Executive Order Plan to Steal the 2026 Midterms

#NNPA BlackPress1 month ago

U.S. manufacturing rebounds – how foundry services are adapting to rising demand

Activism4 weeks ago

Oakland Post: Week of March 4 – 10, 2026

Bay Area entrepreneurs attend the Alley-Oop Accelerator, a small business incubation program at Chase Oakland Community Center. Photo by Carla Thomas.
Activism1 month ago

Chase Oakland Community Center Hosts Alley-Oop Accelerator Building Community and Opportunity for Bay Area Entrepreneurs

#NNPA BlackPress1 month ago

Poll Shows Support for Policies That Help Families Afford Child Care

#NNPA BlackPress1 month ago

OP-ED: One Hundred Years of Black Workers Telling the Truth

#NNPA BlackPress1 month ago

Advancements in solar technology that are changing the way we power the world

#NNPA BlackPress4 weeks ago

Woman’s Search for Family’s Roots Leads to Ancestor John T. Ward – A Successful Entrepreneur and Conductor on the Underground Railroad

#NNPA BlackPress1 month ago

PRESS ROOM: Civil Rights TV Launches in Selma as the World’s First 24/7 Civil Rights Television Network

#NNPA BlackPress4 weeks ago

COMMENTARY: Women of Color Shape Our Past and Future

Trending

Copyright ©2021 Post News Group, Inc. All Rights Reserved.