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OPINION: Alzheimer’s Drugs Decision Has Deeper Impact on Health of Blacks, Other Minorities

Regulators at the Center for Medicare & Medicaid Services (CMS) are fully aware that Alzheimer’s disease is a devastating disease that affects more than 6 million Americans, 80% of whom are Medicare beneficiaries. Among Americans 65 and older, Blacks have the highest percentage of Alzheimer’s disease, 13.8%, according to the Centers of Disease Control and Prevention (CDC). In fact, the Alzheimer’s Association reports that older Blacks are twice as likely to have Alzheimer’s disease than whites.

Published

12 months ago

April 15, 2022

Oakland Post

Among Americans 65 and older, Blacks have the highest percentage of Alzheimer’s disease, 13.8%, according to the Centers of Disease Control and Prevention (CDC). In fact, the Alzheimer’s Association reports that older Blacks are twice as likely to have Alzheimer’s disease than whites.

Isadore Hall. Photo courtesy of the author.

By Isadore Hall

Special to California Black Media

Last spring, the Food and Drug Administration (FDA) approved the first new Alzheimer’s disease therapy since 2003. For the 6 million-plus people living with the fatal disease in the United States, the availability of a medicine designed to treat the underlying cause of their ailment was a significant breakthrough.

However, it appears very few of those 6 million Alzheimer’s patients will receive this promising new treatment because of regulators at the Center for Medicare & Medicaid Services (CMS).

CMS is the federal government office that oversees health coverage of more than 100 million people through Medicare, Medicaid, the Children’s Health Insurance Program, and the Health Insurance Marketplace. One of the agency’s main functions is strengthening and modernizing the nation’s health care system to provide access to high quality care at lower costs.

In January, CMS launched a process called a National Coverage Determination (NCD) to decide whether Medicare would pay for this newly approved Alzheimer’s therapy or not. Their draft decision: Medicare, as the insurer of roughly 62 million Americans, would not cover this medicine.

The proposed NCD applies to an entire class of Alzheimer’s drugs, which could impact the current FDA approved drug, aducanumab, as well as future drug therapies in this class. Given the regulatory governance granted to the FDA by Congressional order, it is my opinion this element of the NCD is over-reaching and creates a divisive relationship between two of the most critical federal agencies in the country, FDA and CMS.

This decision would also require certain Alzheimer drugs already in development (which may have different demographic and efficacy profiles) to be subjected to a CED process that lacks its own data and does not take into consideration diversity, inclusion, and efficacy.

Furthermore, and most important, the proposed NCD betrays the commitment articulated by President Joe Biden in his Executive Order on Advancing Racial Equity and Support for Underserved Communities Through the Federal Government.

“Equal opportunity is the bedrock of American democracy, and our diversity is one of our country’s greatest strengths. But for too many, the American Dream remains out of reach. Entrenched disparities in our laws and public policies, and in our public and private institutions, have often denied that equal opportunity to individuals and communities,” Biden states in the document.

“Our country faces converging economic, health, and climate crises that have exposed and exacerbated inequities, while a historic movement for justice has highlighted the unbearable human costs of systemic racism,” the president’s statement continued.

“Our Nation deserves an ambitious whole-of-government equity agenda that matches the scale of the opportunities and challenges that we face. It is therefore the policy of my Administration that the Federal Government should pursue a comprehensive approach to advancing equity for all, including people of color and others who have been historically underserved, marginalized, and adversely affected by persistent poverty and inequality.”

I know that CMS is fully aware that Alzheimer’s disease is a devastating disease that affects more than 6 million Americans, 80% of whom are Medicare beneficiaries. Among Americans 65 and older, Blacks have the highest percentage of Alzheimer’s disease, 13.8%, according to the Centers of Disease Control and Prevention (CDC). In fact, the Alzheimer’s Association reports that older Blacks are twice as likely to have Alzheimer’s disease than whites.

African Americans are also mostly likely to be undiagnosed for Alzheimer’s Disease, according to the National Institutes of Health. Therefore, we are also most likely to be untreated.

This issue is very personal for me.

My grandmother lost her fight to Alzheimer’s Disease in 2017. I often watched her feeling helpless as she suffered from this horrifying and painful disease.

Like my grandma, millions of other grandparents, parents and loved ones bear the burdens of this disease and die from it every day.

What would it take for us to do right by them? For us to make sure that as we search for a cure, people who are living with it are receiving the best possible treatments?

CMS must modify its proposed determination to cover all FDA-approved Alzheimer’s therapies. This would give patients, social workers and physicians the ability to make collaborative decisions in the best interests of those suffering from Alzheimer’s disease.

Isadore Hall is a former California State Senator and Assemblymember from the Los Angeles Area. He currently sits on the California Agricultural Labor Relations Board.

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20 Years Later, Breast Cancer Emergency Fund a Testament to Faith Fancher’s Enduring Legacy

When a woman is undergoing treatment for breast cancer, chemotherapy and radiation often make her too weak to work. If she is working a low-paying job or unemployed, the mounting bills can become overwhelming. For 20 years, the Women’s Cancer Resource Center (WCRC) has provided a lifeline. The Berkeley-based non-profit organization administers the Faith Fancher Breast Cancer Emergency Fund, which gives cash grants of up to $595 to low-income women in Alameda and Contra Costa Counties who are battling breast cancer.

Published

17 hours ago

March 31, 2023

Oakland Post

Faith Fancher, a KTVU reporter, died of breast cancer in 2003

By Tammerlin Drummond

For 20 years, the Women’s Cancer Resource Center (WCRC) has provided a lifeline. The Berkeley-based non-profit organization administers the Faith Fancher Breast Cancer Emergency Fund, which gives cash grants of up to $595 to low-income women in Alameda and Contra Costa Counties who are battling breast cancer.

Grant recipients have used the money to help pay for food, utilities, rent, car insurance, medical co-pays and other necessities. One woman who was diagnosed with Stage 4 breast cancer said she used her $595 grant to buy an oxygen concentrator.

“You could say the air I breathe is because of your generosity,” she said. “I am so incredibly grateful to you and am feeling better every day.

The fund is named in honor of Faith Fancher, a popular television reporter at KTVU who died in 2003 after a valiant battle against breast disease, the web site says. Fancher saw her own cancer as an opportunity to use her public profile to raise awareness and educate others about the importance of early detection.

Fancher founded an organization called Friends of Faith that was dedicated to raising funds for low-income women with breast cancer.

It was 20 years ago this March that Fancher first approached the Women’s Cancer Resource Center about setting up an emergency grant program for women going through breast cancer treatment.

One of the earliest recipients was a 50-year-old homeless woman who used her $595 grant to pay for moving costs into housing she could afford.

“Faith understood the financial burden that low-income individuals faced when diagnosed with breast cancer,” said Dolores Moorehead, who oversees the fund at the WCRC. “This was the first fund dedicated to financial support being offered in the East Bay.”

Over the past two decades, the Faith Fancher Breast Cancer Emergency Fund has given out $992,000 in one-time cash grants. There have been 2,500 beneficiaries, including women and some men with breast cancer.

Ricki Stevenson, a founding member of Friends of Faith, reflected on Fancher’s legacy and the enduring impact of the emergency fund that she created.

“It says that Faith continues to be a presence and it wasn’t just about her,” Stevenson said. “It was so all of the other sisters who come behind us they now have help even though they don’t have the same resources.”

Rosie Allen, another founding member of Friends of Faith, said Fancher left a lasting impact. “Twenty years later Faith is no longer with us, but the breast cancer emergency fund lives on and the need is even greater than ever.”

The Friends of Faith used to host an annual 5K walk/run at Lake Merritt to honor Fancher after she died. It raised funds for the emergency fund and other Bay Area non-profits that provide services to breast cancer survivors.

After Friends of Faith disbanded in 2017, the To Celebrate Life Foundation, former Friends of Faith board members and community members have continued to support the breast cancer emergency fund.

Shyanne Reese used her grant to help pay her rent while she was going through breast cancer treatment.

“I often reflect on how I wish I could share with Faith the impact her life and friends made on me in a non-judgement environment, relieving the financial stress of simply paying the rent so that I could focus on healing,” Reese said.

“With your support, we are able to continue this fund and support our community members when they need us most, said WCRC Executive Director Amy Alanes.

To donate to the Faith Fancher Breast Cancer Emergency fund, visit https://tinyurl.com/FaithFancher.

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Oakland Post: Week of March 29 – April 4, 2023

The printed Weekly Edition of the Oakland Post: Week of March 29 – April 4, 2023

Published

22 hours ago

March 31, 2023

Oakland Post

The printed Weekly Edition of the Oakland Post: Week of March 29 - April 4, 2023

To enlarge your view of this issue, use the slider, magnifying glass icon or full page icon in the lower right corner of the browser window.

Activism

How the Crack Cocaine Epidemic Led to Mass Sex Exploitation of Black People PART 3: The Case Against SB357: Black, Vulnerable and Trafficked

Although California Senate Bill 357 was intended to alleviate arrests of willing sex workers under anti-loitering laws, it opened up a Pandora’s box loophole that hinders the ability of law enforcement to halt human trafficking, especially of young Black and Brown girls. This segment continues to explore the history that led to this latest form of exploitation in Oakland.

Published

7 days ago

March 25, 2023

Oakland Post

Sable tied up.

By Tanya Dennis and Vanessa Russell

It was 1980: The beginning of the end for the Black family and Black community as we knew it.

Crack cocaine was introduced to the United States that year and it rendered unparalleled devastation on Black folks. Crack is a solid smokable form of cocaine made by boiling baking soda, cocaine, and water into a rock that crackles when smoked.

The tremendous high — especially when first smoked — and the low cost brought temporary relief to the repeatedly and relentlessly traumatized members of the Black community.

What was unknown at the time was how highly addictive this form of cocaine would be and how harmful the ensuing impact on the Black family when the addicted Black mother was no longer a haven of safety for her children.

The form made it easy to mass produce and distribute, opening the market to anyone and everyone, including many Black men who viewed selling crack as their way out of poverty.

These two factors — addicted Black women and drug-dealing Black men — would lead to the street exploitation for sex as we know it today.

Encouraged to try it free initially, most poor, Black women in the 1980s used crack cocaine in a social setting with friends. When the free samples disappeared the drug dealer offered to supply the women crack in exchange for allowing him to sell their bodies to sex buyers.

The increase in the supply of women willing to exchange sex for crack — a.k.a. the “sex for crack barter system” — caused the price of sex to decrease and at the same time increased the demand for sex because more buyers could afford it.

The desperation of the women to get their hit of crack made them willing to endure any form of abuse and treatment from buyers during sex, including unprotected and violent sex.

It also pushed desperate Black women onto the street to pursue sex buyers, flagging down cars and willing to have sex anywhere actively and desperately. Street prostitution grew and buyers were able to buy oral sex for as little as $5.
This sex-for-crack barter system resulted in a dramatic increase in sexually transmitted diseases including HIV and AIDS, both of which are disproportionately represented among Black people.
It also resulted in unplanned pregnancies by unknown fathers, which then resulted in children born addicted to crack who were immediately placed in the foster care system where they were often abused and/or neglected.

For his part, the Black man who engaged in the mass production and distribution of crack was often killed by gun violence while fighting over drug territory or incarcerated for long periods of time as use and sales and distribution of crack carried longer sentences than powdered cocaine.

Crack unleashed an entire chain of new trauma upon the Black family which then all but collapsed under this latest social attack that had started with chattel slavery, followed by Jim Crow, redlining, school segregation, food deserts, et. al.

Exploitation was and is at the root of the crack cocaine epidemic. It is the latest weapon used to prey upon Black people since the beginning of our time in the United States.

The sex industry and legislation like SB357 have only increased harm to Black people who have been historically oppressed with racist laws and epidemics including crack. More must be done to restore the Black community.

Tanya Dennis serves on the Board of Oakland Frontline Healers (OFH) and series co-author Vanessa Russell of “Love Never Fails Us” and member of OFH.