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UAB Looks to Retain Participants in All of Us Research Program

BIRMINGHAM TIMES — Recruiting participants to a research program is one thing. Keeping those participants engaged over time is another. Investigators at the University of Alabama at Birmingham (UAB), which heads the Southern Network of the National Institutes of Health’s All of Us Research Program, will launch a new pilot study aimed at increasing participant retention rates in All of Us in the state of Alabama.

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By Bob Shepard

Recruiting participants to a research program is one thing. Keeping those participants engaged over time is another. Investigators at the University of Alabama at Birmingham (UAB), which heads the Southern Network of the National Institutes of Health’s All of Us Research Program, will launch a new pilot study aimed at increasing participant retention rates in All of Us in the state of Alabama.

All of Us is a national program to accelerate health research and medical breakthroughs, enabling individualized prevention, treatment and care for all of us. The overall aim nationally is to enroll 1 million or more volunteers who will provide information over time for use in a wide range of health research studies. The program will oversample communities that have been underrepresented in biomedical research to make the program’s dataset the largest, most diverse resource of its kind.

Launched in May 2018, All of Us has enrolled more than 270,000 participants nationwide. The Southern Network, consisting of Alabama, Mississippi and Louisiana, has enrolled more than 17,700.

UAB investigators, funded by an additional $7 million funding award from NIH, will conduct a pilot study to discover better ways to engage and retain those enrollees. UAB will share lessons learned from this pilot with other All of Us partners to support retention efforts nationwide, particularly with other rural and hard-to-reach communities.

“Retaining research participants over the course of a multiple-year study can be difficult, especially in a large, multifaceted program such as All of Us,” said Bruce R. Korf, M.D., Ph.D., UAB chief genomics officer and co-principal investigator for the All of Us Southern Network. “The goal of this pilot study will be to assess retention models even as we continue enrollment efforts throughout the three-state Southern Network.”

The pilot will employ a retention navigator model, using specially trained navigators to interact directly with participants. Navigators will be recruited locally in areas where access to UAB or the other study sites is a barrier to recruitment and retention.

“Individuals may be more likely to remain involved in the program if they can relate to trusted ‘retention navigators,’ who can help them to understand and interact with All of Us and overcome barriers such as lack of internet or email access or fear of research studies,” said Mona Fouad, M.D., director of the UAB Minority Health and Health Disparities Research Center.

Reaching Remote Areas

The program will be utilizing a mobile clinical unit to reach remote areas, eliminating the need for participants to travel to UAB or one of the other study sites. The investigators will also assess the efficacy of traditional and new digital retention strategies.

“Use of enhanced digital and traditional retention techniques can improve participant engagement and increase the likelihood of follow-up by creating stronger and more frequent connections to the program,” said Cora E. Lewis, M.D., chair of the Department of Epidemiology in the School of Public Health and co-PI of the Southern Network.

The pilot will identify and engage health care providers, community leaders and community organizations in the target areas to assist in the identification and recruitment of navigators, and then recruit retention navigators in those targeted areas. Investigators hope to increase study retention by assisting participants in completing follow-up surveys online through the All of Us participant portal.

“Recruitment and retention of participants in clinical research is the key to finding the answers that can be transformative for the overall health of our state and region,” said Selwyn Vickers, M.D., senior vice president and dean of the UAB School of Medicine. “I applaud the leadership and staff of the Southern Network for their outstanding efforts thus far. I am confident that they will discover and fine-tune new strategies for keeping those who selflessly give of themselves to participate in All of Us active and engaged over the course of the research project.”

Alabamians age 19 or older, regardless of health status, are eligible to enroll in the program by visiting JoinAllofUs.org/UAB.

The All of Us Southern Network includes the University of Alabama at Birmingham, Cooper Green Mercy Health Services, Huntsville Hospital, Louisiana State University Health Sciences Center, Tulane University, Tuskegee University, UAB School of Medicine’s Montgomery Internal Medicine and Selma Family Medicine programs, UAB School of Medicine’s Huntsville Regional Medical Campus, University of Mississippi Medical Center, University of South Alabama Health System, and University Medical Center in Tuscaloosa.

This article originally appeared in The Birmingham Times.

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IN MEMORIAM: Ramona Edelin, Influential Activist and Education Advocate, Dies at 78

NNPA NEWSWIRE — Born on September 4, 1945, in Los Angeles, California, activist Ramona Edelin’s early years were marked by a commitment to education and social justice. According to her HistoryMakers biography, after graduating from Fisk University with a Bachelor’s degree in 1967, she pursued further studies at the University of East Anglia in England. She earned her master’s degree before completing her Ph.D. at Boston University in 1981.
The post IN MEMORIAM: Ramona Edelin, Influential Activist and Education Advocate, Dies at 78 first appeared on BlackPressUSA.

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By Stacy M. Brown, NNPA Newswire Senior National Correspondent
@StacyBrownMedia

Once upon a time, Black Americans were simply known as colored people, or Negroes. That is until Ramona Edelin came along. The activist, renowned for her pivotal roles in advancing civil rights, education reform, and community empowerment, died at her D.C. residence last month at the age of 78. Her death, finally confirmed this week by Barnaby Towns, a communications strategist who collaborated with Dr. Edelin, was attributed to cancer.

Born on September 4, 1945, in Los Angeles, California, Edelin’s early years were marked by a commitment to education and social justice. According to her HistoryMakers biography, after graduating from Fisk University with a Bachelor’s degree in 1967, she pursued further studies at the University of East Anglia in England. She earned her master’s degree before completing her Ph.D. at Boston University in 1981.

Edelin’s contributions to academia and activism were manifold. She was pivotal in popularizing the term “African American” alongside Rev. Jesse L. Jackson in the late 1980s.

Jackson had announced the preference for “African American,” speaking for summit organizers that included Dr. Edelin. “Just as we were called Colored, but were not that, and then Negro, but not that, to be called Black is just as baseless,” he said, adding that “African American” “has cultural integrity” and “puts us in our proper historical context.”

Later, Edelin told Ebony magazine, “Calling ourselves African Americans is the first step in the cultural offensive,” while linking the name change to a “cultural renaissance” in which Black Americans reconnected with their history and heritage.

“Who are we if we don’t acknowledge our motherland?” she asked later. “When a child in a ghetto calls himself African American, immediately he’s international. You’ve taken him from the ghetto and put him on the globe.”

The HistoryMakers bio noted that Edelin’s academic pursuits led her to found and chair the Department of African American Studies at Northeastern University, where she established herself as a leading voice.

Transitioning from academia to advocacy, Edelin joined the National Urban Coalition in 1977, eventually ascending to president and CEO. During her tenure, she spearheaded initiatives such as the “Say Yes to a Youngster’s Future” program, which provided crucial support in math, science, and technology to youth and teachers of color in urban areas. Her biography noted that Edelin’s efforts extended nationwide through partnerships with organizations like the National Science Foundation and the United States Department of Education.

President Bill Clinton recognized Edelin’s expertise by appointing her to the Presidential Board on Historically Black Colleges and Universities in 1998. She also co-founded and served as treasurer of the Black Leadership Forum, solidifying her standing as a respected leader in African American communities.

Beyond her professional achievements, Edelin dedicated herself to numerous boards and committees, including chairing the District of Columbia Educational Goals 2000 Panel and contributing to the Federal Advisory Committee for the Black Community Crusade for Children.

Throughout her life, Edelin received widespread recognition for her contributions. Ebony magazine honored her as one of the 100 Most Influential Black Americans, and she received prestigious awards such as the Southern Christian Leadership Award for Progressive Leadership and the IBM Community Executive Program Award.

The post IN MEMORIAM: Ramona Edelin, Influential Activist and Education Advocate, Dies at 78 first appeared on BlackPressUSA.

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Tennessee State University Board Disbanded by MAGA Loyalists as Assault on DE&I Continues

NNPA NEWSWIRE — Recent legislative actions in Tennessee, such as repealing police reform measures enacted after the killing of Tyre Nichols, underscore a troubling trend of undermining local control and perpetuating racist agendas. The new law preventing local governments from restricting police officers’ authority disregards community efforts to address systemic issues of police violence and racial profiling.
The post Tennessee State University Board Disbanded by MAGA Loyalists as Assault on DE&I Continues first appeared on BlackPressUSA.

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By Stacy M. Brown, NNPA Newswire Senior National Correspondent
@StacyBrownMedia

Tennessee State University (TSU), the state’s only public historically Black college and university (HBCU), faces a tumultuous future as Gov. Bill Lee dissolved its board, a move supported by racist conservatives and MAGA Republicans in the Tennessee General Assembly, who follow the lead of the twice-impeached, four-times indicted, alleged sexual predator former President Donald Trump. Educators and others have denounced the move as an attack on diversity, equity, and inclusion (DE&I) and a grave setback for higher education.

Critics argue that TSU’s purported financial mismanagement is a manufactured crisis rooted in decades of underinvestment by the state government. They’ve noted that it continues a trend by conservatives and the racist MAGA movement to eliminate opportunities for Blacks in education, corporate America, and the public sector.

Gevin Reynolds, a former speechwriter for Vice President Kamala Harris, emphasizes in an op-ed that TSU’s financial difficulties are not the result of university leadership because a recent audit found no evidence of fraud or malfeasance.

Reynolds noted that the disbanding of TSU’s board is not an isolated incident but part of a broader assault on DE&I initiatives nationwide. Ten states, including Tennessee, have enacted laws banning DE&I policies on college campuses, while governors appointing MAGA loyalists to university trustee positions further undermine efforts to promote inclusivity and equality.

Moreover, recent legislative actions in Tennessee, such as repealing police reform measures enacted after the killing of Tyre Nichols, underscore a troubling trend of undermining local control and perpetuating racist agendas. The new law preventing local governments from restricting police officers’ authority disregards community efforts to address systemic issues of police violence and racial profiling.

The actions echo historical efforts to suppress Black progress, reminiscent of the violent backlash against gains made during the Reconstruction era. President Joe Biden warned during an appearance in New York last month that Trump desires to bring the nation back to the 18th and 19th centuries – in other words, to see, among other things, African Americans back in the chains of slavery, women subservient to men without any say over their bodies, and all voting rights restricted to white men.

The parallels are stark, with white supremacist ideologies used to justify attacks on Black institutions and disenfranchise marginalized communities, Reynolds argued.

In response to these challenges, advocates stress the urgency of collective action to defend democracy and combat systemic racism. Understanding that attacks on institutions like TSU are symptomatic of broader threats to democratic norms, they call for increased civic engagement and voting at all levels of government.

The actions of people dedicated to upholding the principles of inclusivity, equity, and justice for all will determine the outcome of the ongoing fight for democracy, Reynolds noted. “We are in a war for our democracy, one whose outcome will be determined by every line on every ballot at every precinct,” he stated.

The post Tennessee State University Board Disbanded by MAGA Loyalists as Assault on DE&I Continues first appeared on BlackPressUSA.

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Braxton Haulcy and the Expansion of Walker|West Music Academy

May 24, 2023 – Walker West Music Academy gets an early start on expansion. Join us for a Wednesday episode of The …
The post Braxton Haulcy and the Expansion of Walker|West Music Academy first appeared on BlackPressUSA.

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May 24, 2023 – Walker West Music Academy gets an early start on expansion. Join us for a Wednesday episode of The …

The post Braxton Haulcy and the Expansion of Walker|West Music Academy first appeared on BlackPressUSA.

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