Connect with us

#NNPA BlackPress

Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs

By Je’Don Holloway-Talley The Birmingham Times It all started with a bow, said Taneka Gillard, founder of the iReign Special Needs Support Group Alabama. Her daughter, Reign, was born two months premature and spent months in the neonatal intensive care unit (NICU) in 2009 at St. Vincent’s Ascension Hospital in downtown Birmingham. To pass the […]
The post Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs first appeared on BlackPressUSA.

Published

on

Taneka Gillard, founder, iReign Special Needs Support Group Alabama, with daughter, Reign. (Amarr Croskey, For The Birmingham Times)

” data-medium-file=”https://www.birminghamtimes.com/wp-content/uploads/2023/11/TanekaGillard-5-300×200.jpg” data-large-file=”https://www.birminghamtimes.com/wp-content/uploads/2023/11/TanekaGillard-5-1024×683.jpg” />

By Je’Don Holloway-Talley
The Birmingham Times

It all started with a bow, said Taneka Gillard, founder of the iReign Special Needs Support Group Alabama. Her daughter, Reign, was born two months premature and spent months in the neonatal intensive care unit (NICU) in 2009 at St. Vincent’s Ascension Hospital in downtown Birmingham. To pass the time while her daughter was in the NICU, Gillard began to knit.

“I wanted to make her something special that she could wear while she was in the incubator, so I made her a bow,” Gillard said.

Reign was diagnosed with several conditions, and “she will never walk, or talk, or make any of the milestones that [typical children] do within the first days and years of their lives,” said Gillard. “As a parent, all the dreams you had for [your child change].”

While sitting with her daughter, Gillard said, “One bow turned into two”—and soon she’d created a variety of bows and knitted accessories in different colors to represent various conditions and disabilities in advocacy of special needs babies and children.

“Nurses and other mothers in the NICU would notice the bows in Reign’s hair and would ask me to make one for them or make them some booties,” Gillard said. “When Reign was about 3 years old, [in 2012], I started Reignbows, [an online accessory boutique].”

Starting the brand was not easy for Gillard, 50, a Long Island, New York, native, who said she often felt alone, under-resourced, ill-informed, and overlooked throughout the journey she and Reign, now 14, shared.

Click to view slideshow.

Becoming a Resource

Gillard not only created the bows but also established the iReign Special Needs Support Group Alabama, a Facebook-based advocacy and support group designed to be an interactive community for parents and caretakers of children with special needs.

“I’m trying to grow the group,” Gillard said of the online community that was founded this past spring. “I’m trying to spread the word to other parents because this group is for them. It was created by a parent for parents, and our motto is ‘We get you because we are you.’”

She added that iReign is a private Facebook group. “It’s not an open group because I’m trying to build an online community that is a safe space where caretakers can feel comfortable sharing their struggles, engaging, and being honest about their journeys. It’s a lifelong journey because many of our children’s diagnoses are chronic and will [span their lifetimes].”

Gillard created the group because she realized that it was difficult to find information pertaining to services for children with special needs.

“iReign is the group that gets information to the people,” she said. “We [provide] education on different disabilities from week to week. We look at and discuss different topics, different wins, and different struggles that parents and caretakers go through. The group is supporting families, giving them education, and, of course, advocating and teaching them how to advocate for themselves and their child’s needs.”

The group also gives parents and caretakers the opportunity to learn from one another.

“I learned early that I had to find resources for myself. I had to make the calls and do the research myself over the years, and it was overwhelming,” Gillard said. “[iReign allows] parents to learn from each other. One parent told me I could get doctors’ orders, [a sort of prescription], for diapers after Reign reached a certain age. Another neighbor told me about the Embrace Watch, [a U.S. Food and Drug Administration-cleared smartwatch that can be worn as a seizure alert system to detect some types of seizure and send an alert signal to caregivers]. … That’s why I started the iReign Special Needs Support Group Alabama—we need each other’s support.”

Being an Alabama-focused support group is intentional, the founder said: “When you talk about resources, you have to be specific to your state. When a group is generalized [in regard to location or demographics] you can’t just throw in a question because everybody lives in different states, so everybody’s going to have a different answer.”

Family Struggles

The name and phrase “iReign” represent strength and triumph, said Gillard, who also has two adult sons, ages 18 and 28. “Special needs children have a lot of struggles, but families as a whole struggle,” she said. “There are hurdles you have to jump over, and you have to reign over those obstacles by any means necessary.”

“[Reign] has a lot of disabilities and conditions,” Gillard said of her daughter, who has “quadriplegia, a form of paralysis that affects all four limbs, plus the torso. Her conditions also have included Dandy-Walker syndrome, (more here Dandy-Walker Alliance); hydrocephalus, (more here Hydrocephalus Association); cerebral palsy, (more here Cerebral Palsy Foundation); and epilepsy (more here Epilepsy Foundation).

“We have multiple diagnoses, and we can’t focus on one, and that’s part of what iReign is for,” said Gillard. “We’re telling parents, ‘Hey, we get it. We know [you can’t put a] basic blanket over all the conditions.’ There are more conditions and disabilities than cerebral palsy, epilepsy, Down syndrome, and autism. There are so many other conditions that are overlooked, and we don’t want to overlook any condition because they’re all important. That’s why we look at both the intellectual disability and the physical disability when we talk about children with disabilities or special needs.”

Gillard, a Pinson, Alabama, resident, who is also a twin, decided she would name her daughter Reign while she was pregnant.

“She was my first girl, and I already had two boys. I would say, ‘Reign and I are going to reign all over this house,’” Gillard said with a laugh. “I had all the dreams a mother has for herself and her baby girl. I knew she would be strong, and I knew she would take life by the horns, so I decided on Reign for her name.”

Despite the challenges, Gillard said Reign’s strength is exemplary, and she has triumphed over every surgery and obstacle they’ve faced. Still, those initial diagnoses, surgeries, and long hospital stays can be daunting.

“You go from living your everyday life to having to make sacrifice after sacrifice to take care of your child,” the mom said. “I had to sacrifice my job [as a licensed practical nurse (LPN) working as a school nurse], and I had to sacrifice school when I was going for my registered nurse degree. … I think that’s what pushed me to go back to school [in 2017] and major in psychology. … All of the stress takes a toll on you mentally, and I wanted to learn how to cope with it and help others.”

Becoming a Specialist

Gillard earned a Bachelor of Science degree in psychology in 2018 from the University of Alabama at Birmingham (UAB). She also attended American Public University online, where she obtained a child life specialist certification in 2020 in which she is clinically trained in the developmental impact of illness and injury.

“I went back to school to get my psychology degree and child life specialist certification because I want to help families and give them resources,” said Gillard, adding that spending time in hospitals helped her understand the importance of child life specialists.

“It’s the psychology of dealing with the family dynamics of special needs children or special treatments, children with cancer, or any health issue that going to have them in a hospital long term … to try to make their life in the hospital as close to at home or normal as possible,” she said.

Having been a rehabilitation nurse (a professional who assists individuals with a disability and/or chronic illness to help them attain and maintain maximum function prior to her daughter’s birth gave Gillard the skills she would need to administer home care to Reign.

“When I go to see the doctors and all the specialists, I like for them to give it to me straight, don’t sugarcoat anything, give it to me raw, and let me take it in and process it the way it needs to be processed,” she said. “I always tell people that God prepared me for my daughter and prepared me in my career, as well.”

Gillard wrote a book titled “iReign” just after her daughter was born: “[It is] about my struggles, what I’ve seen in other families, how I’ve seen it affect the family dynamic if you don’t have a support system, how it affects you [as an individual], and how it just changes your whole life.”

Gillard is also a licensed cosmetologist. “Doing hair really got me through a lot because I’m creative, and it gives me an outlet. When I had to give up my job and quit school, my hair career is what took me through, and it still gets me through a lot,” she said, adding that doing hair remains her side hustle.

“During the summer and breaks from school, I’m not able to work full-time because I don’t have in-home nurses and [Reign] is not in school, but I can always take her to the shop with me,” she added.

In addition, Gillard still runs the Reignbows online accessories boutique, which has been in existence for more than a decade. Through her brand, she advocates for and gives back to the special needs community, both of which are among her priorities.

“On the Reignbows side, it’s the same thing [we do through the iReign Special Needs Support Group Alabama Facebook community]—we’re educating and advocating—but it’s more of a sales platform,” Gillard said. “We always donate back to the community from the sales we make from Reignbows, whether it’s to a school, hospital, or any type of organization that’s local within Birmingham. … We’ve also donated to other states in the past, it’s just wherever the need is.”

To join the iReign Special Needs Support Group Alabama Facebook community, visit https://www.facebook.com/groups/specialneedssupportgroupalabama. To shop at the Reignbows online boutique, visit http://www.shopreignbowsonline.com, and follow Reignbows on Facebook and Instagram @reignbows. To get more information about both iReign and Reignbows, join the mailing list at http://www.shopreignbowsonline.com.

 

This article originally appeared in The Birmingham Times.

The post Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs first appeared on BlackPressUSA.

Continue Reading
Click to comment

Leave a Reply

Your email address will not be published. Required fields are marked *

#NNPA BlackPress

Black Artists in America, Installation Three Wraps at the Dixon Gallery and Gardens

TRI-STATE DEFENDER — With 50+ paintings, sculptures and assemblages, the exhibit features artists like Varnette Honeywood from Los Angeles, whose pieces appeared in Bill Coby’s private collection (before they were auctioned off) and on “The Cosby Show.” Also included are works by Alonzo Davis, another Los Angeles artist who opened one of the first galleries there where Black Artists could exhibit. 

Published

on

By

By Candace A. Gray | Tri-State Defender

The tulips gleefully greet those who enter the gates at the Dixon Gallery & Gardens on an almost spring day. More than 650,000 bulbs of various hues are currently on display. And they are truly breathtaking.

Inside the gallery, and equally as breathtaking, is the “Black Artists in America, From the Bicentennial to September 11” exhibit, which runs through Sunday, March 29. This is the third installment of a three-part series that started years ago and illustrates part of the Black experience through visual arts in the 20th century.

“This story picks up where part two left off,’’ said Kevin Sharp, the Linda W. and S. Herbert Rhea director for the Dixon. “This era is when we really start to see the emergence of these important Black artists’ agency and freedom shine through. They start to say and express what they want to, and it was a really beautiful time.”

With 50+ paintings, sculptures and assemblages, the exhibit features artists like Varnette Honeywood from Los Angeles, whose pieces appeared in Bill Coby’s private collection (before they were auctioned off) and on “The Cosby Show.” Also included are works by Alonzo Davis, another Los Angeles artist who opened one of the first galleries there where Black Artists could exhibit.

“Though [Davis] was from LA, he actually lived in Memphis for a decade,” said Sharp. “He was a dean at Memphis College of Art, and later opened the first gallery in New York owned and operated by black curators.”

Another featured artist is former NFL player, Ernie Barnes. His work is distinctive. Where have you seen one of his most popular paintings, Sugar Shack? On the end scene and credits of the hit show “Good Times.” His piece Saturday Night, Durham, North Carolina, 1974 is in this collection.

Memphis native James Little’s “The War Baby: The Triptych” is among more than 50 works featured in “Black Artists in America, From the Bicentennial to September 11” at the Dixon Gallery & Gardens, the final installment of a three-part series highlighting the impact and evolution of Black artists through 2011.

Memphis native James Little’s “The War Baby: The Triptych” is among more than 50 works featured in “Black Artists in America, From the Bicentennial to September 11” at the Dixon Gallery & Gardens, the final installment of a three-part series highlighting the impact and evolution of Black artists through 2011.

The exhibit features other artists with Memphis ties, including abstract painter James Little, who was raised in a segregated Memphis and attended Memphis Academy of Art (before it was Memphis College of Art). He later moved to New York, became a teacher and an internationally acclaimed fixture in the art world in 2022 when he was named a Whitney Biennial selected artist at the Whitney Museum of American Art in New York.

Other artists like Romare Bearden, who had a Southern experience but lived up North, were featured in all three installments.

“During this period of time, he was a major figure,” said Sharp. “He wrote one of the first books on the history of African American art during a time when there were more Black academics, art teachers, more Black everything!”

Speaking of Black educators, Sharp said the head curator behind this tri-part series and Dixon’s partner in the arts is Earnestine Jenkins, Ph.D., an art history professor at the University of Memphis, who also earned a Master of Arts degree from Memphis State University (now UofM).  “We began working with Dr. Jenkins in 2018,” he said.

Sharp explained that it takes a team of curators, registrars, counterparts at other museums, and more, about three years to assemble an exhibit like this. It came together quite seamlessly, he added. Each room conjured up more jaw-dropping “wows” than the one before it. Each piece worked with the others to tell the story of Black people and their collective experience during this time period.

One of the last artists about whom Sharp shared information was Bettye Saar, who will turn 100 years old this year. She’s been working in Los Angeles for 80 years and is finally getting her due. Her medium is collages or assemblages, and an incredible work of hers is on display. She’s married to an artist and has two daughters, also artists.

The exhibit catalogue bears some of these artists’ stories, among other scholarly information.

The exhibit, presented by the Joe Orgill Family Fund for Exhibitions, is culturally and colorfully rich. It is a must see and admission to the Dixon is free.

Visit https://www.dixon.org/ to learn more.

Fun Facts: An original James Little design lives in the flooring of the basketball court at Tom Lee Park, and he makes and mixes his own paint colors.

Continue Reading

#NNPA BlackPress

Grief, Advocacy, and Education: A Counselor Reflects on Black Maternal Health

SAN DIEGO VOICE & VIEWPOINT — Last month healthcare leaders, birth workers, and community members gathered to honor the legacy of Charleston native Dr. Janell Green Smith, a nurse-midwife and doctor of nursing practice who died in January from childbirth complications. She had participated in more than 300 births and specialized in helping Black women give birth safely.  

Published

on

By

By Jennifer Porter Gore | Word-In-Black | San Diego Voice and Viewpoint

In 2024, the number of U.S. mothers who died as a result of pregnancy or childbirth dropped compared to 2023. But while slightly fewer Black mothers died that year, they still had three times the mortality rate of white women.

South Carolina’s rates of maternal deaths outpaced even the national rates. In fact, the state’s overall rate of maternal deaths between 2019 and 2023 was higher than all but eight states and the District of Columbia.

Last month healthcare leaders, birth workers, and community members gathered to honor the legacy of Charleston native Dr. Janell Green Smith, a nurse-midwife and doctor of nursing practice who died in January from childbirth complications. She had participated in more than 300 births and specialized in helping Black women give birth safely.

Her death shocked the community and her colleagues who are determined to address concerns about Black maternal health. The event also covered the importance of protecting mental health during grief and of men’s role in solving the maternal health crisis.

As both a therapist and a father, Lawrence Lovell, a licensed professional counselor and founder of Breakthrough Solutions, discussed ways the event’s attendees could process their grief over Green Smith’s death. He also shared ways male partners can advocate for women’s maternal health during pregnancy and childbirth.

Lovell spoke not just as a therapist but also as a father whose own family had briefly crossed paths with Green Smith. The event, he said, emerged organically from a moment of collective mourning.

Despite the grief, “it was still, like, a really beautiful event, a much-needed event, and it almost felt like we were all giving each other a collective family hug,” says Lovell.

His connection to Green Smith, Lovell says, was brief but meaningful during his wife’s pregnancy with their second child. Green Smith was practicing at the same birthing center where they had their child. She began practicing in Greenville a short time later.Even that short connection carried significance for Lovell, given the small number of Black maternal health professionals.

Lovell did not initially plan to become a mental health practitioner; he chose the career path after graduating from college, when someone suggested he consider psychology. His interest deepened when he noticed how few Black men work in mental health.

“Being Black man and playing football in college, there weren’t a lot of people that look like me talking about mental health,” says Lovell. “[I wanted] to give people that look like me an opportunity to work with someone that looks like them.”

Working with Expectant and New Parents

Lovell often counsels couples preparing for parenthood by, helping partners understand what a successful pregnancy, childbirth, and postpartum recovery look like. That often means helping women manage postpartum depression.

As a man, Lovell says, it’s “humbling” that a woman “just trusts me enough to work with me through their pregnancy or their postpartum recovery.”

In his work, Lovell has noticed how few men understand pregnancy before they experience it with their partner. Because early pregnancy symptoms are often invisible, he says, men may underestimate how much support a mom-to-be actually needs.

“Sometimes they may not realize they don’t know much about pregnancy and what to expect in those three trimesters,” Lovell says. “I tell a lot of the men that just because you can’t see [she’s pregnant] doesn’t mean that she won’t appreciate your intense support in that first trimester.”

Education about pregnancy and postpartum recovery, he says, can change how men support their partners.

Teaching Advocacy in the Delivery Room

Another major focus of Lovell’s counseling is preparing men to advocate for mothers during labor.

“Helping men understand what pregnancy looks like: what delivery is going to look like, and what are the realistic expectations that I should have of myself in postpartum,” he says.

Lovell encourages partners to be honest about their expectations for what will happen during delivery. He helps them prepare for the big day by discussing the birth plan and knowing how to quickly recognize problems. Clear communication, he says, prevents misunderstandings.

He regularly trains men to ask their partners detailed questions about their expectations during and after pregnancy. Advocacy in medical settings can be especially important and requires attention to details the mother may not be able to address.

“It’s always important to fine-tune things and truly understand what helps your partner feel most supported,” Lovell says. “Instead of guessing, you should ask.”

Lovell recalls a moment during the birth of his first child when he had to take that role.

During the delivery, “I felt like something wasn’t as sanitary as I’d like it to be,” he says. “I asked, ‘Hey, can you switch those out? Can you change your gloves?’”

Lovell has a succinct but powerful message he regularly shares with clients’ families, and he shared it with attendees at last month’s event.

“Just to believe women,” he says. “I’ve worked with different couples, and sometimes I’m not really sure that there’s enough empathy from the men.”

That includes how women express pain.

“If a woman says, ‘my pain is at a nine,’ just because how you would express yourself at a nine is different than how she’s expressing herself at [that level] doesn’t mean you shouldn’t believe her,” he says.

Empathy, he says, can change outcomes far beyond the delivery room.

“We’ve got to believe women when they’re talking about their experiences and their feelings and their pain,” he says. “I think there’s a lot that we can prevent if we empathize better.”

Continue Reading

#NNPA BlackPress

Future of Florida’s Black History Museum in Limbo

JACKSONVILLE FREE PRESS — A proposal sponsored by Tom Leek, a Republican from Ormond Beach, has now passed the Senate in back-to-back legislative sessions. But the House version, filed by Kiyan Michael, a Jacksonville Republican, did not receive final approval in either year, effectively stalling the effort.

Published

on

By

Jacksonville Free Press

Plans to establish a long-awaited Black history museum in Florida are once again on hold after legislation needed to advance the project failed to clear the state House for a second consecutive year, despite repeated approval in the Senate.

A proposal sponsored by Tom Leek, a Republican from Ormond Beach, has now passed the Senate in back-to-back legislative sessions. But the House version, filed by Kiyan Michael, a Jacksonville Republican, did not receive final approval in either year, effectively stalling the effort.

Under Florida law, identical or similar bills must pass both chambers before heading to the governor’s desk. Without House approval, the legislation has been unable to move forward, leaving the project in limbo. Long journey, contested location.

The proposed museum, formally known as the Florida Museum of Black History, has been years in the making, with lawmakers and community leaders framing it as a long-overdue institution to preserve and showcase the state’s African American heritage .A central point of contention has been the museum’s location. St. Augustine — widely recognized as the nation’s oldest city and a site deeply tied to both slavery and early Black history — emerged as the leading contender. Supporters argue the city’s historical significance makes it a natural home for the museum. However, competing interests and regional considerations have fueled debate, slowing consensus among lawmakers.

While the Senate-backed measure has consistently advanced, the lack of alignment in the House has underscored ongoing divisions about how and where the project should take shape.

The holdup in the Florida House appears to be less about opposition to the museum itself and more about a combination of procedural bottlenecks, unresolved structural issues, and lingering disagreements over how the project should be formalized and governed.

Despite the legislative setbacks, Republican Gov. Ron DeSantis has publicly voiced support for the museum. Speaking last month during the unveiling of a statue of abolitionist Frederick Douglass in St. Augustine, DeSantis said the project would move forward “one way or another,” signaling an intent to see the museum built regardless of legislative hurdles.

The anticipated museum has already cleared several hurdles. St. Johns County signed an agreement last year with Florida Memorial University to use the land that once housed its campus last year’s legislative session netted $1 million in funding for St. Johns County to work on planning and design for the museum. However, its anticipated that a million $3 million is needed.

Still, without statutory approval to finalize key components — including governance, funding mechanisms and site selection — the project remains largely conceptual.
With the House bill failing again, the timeline for the museum’s development is unclear. Lawmakers could revisit the proposal in the next legislative session, but any further delays risk pushing the project back several more years. Advocates warn that continued inaction could stall momentum for a museum many see as critical to telling a fuller, more accurate story of Florida’s past. For now, the effort remains paused — caught between political support at the top and legislative gridlock within the Capitol.

Continue Reading

Subscribe to receive news and updates from the Oakland Post

* indicates required

CHECK OUT THE LATEST ISSUE OF THE OAKLAND POST

ADVERTISEMENT

WORK FROM HOME

Home-based business with potential monthly income of $10K+ per month. A proven training system and website provided to maximize business effectiveness. Perfect job to earn side and primary income. Contact Lynne for more details: Lynne4npusa@gmail.com 800-334-0540

Facebook

#NNPA BlackPress1 month ago

Reflecting on Black History Milestones in Birmingham AL

Activism1 month ago

Oakland Post: Week of February 25 – March 3, 2026

#NNPA BlackPress1 month ago

PRESS ROOM: NBA Hall of Fame Nominee Terry Cummings Joins 100 Black Men of DeKalb County to Launch Victory & Values Initiative

#NNPA BlackPress1 month ago

Trump’s MAGA Allies are Creating Executive Order Plan to Steal the 2026 Midterms

Activism1 month ago

Oakland Post: Week of March 4 – 10, 2026

Bay Area entrepreneurs attend the Alley-Oop Accelerator, a small business incubation program at Chase Oakland Community Center. Photo by Carla Thomas.
Activism1 month ago

Chase Oakland Community Center Hosts Alley-Oop Accelerator Building Community and Opportunity for Bay Area Entrepreneurs

#NNPA BlackPress1 month ago

U.S. manufacturing rebounds – how foundry services are adapting to rising demand

#NNPA BlackPress1 month ago

Poll Shows Support for Policies That Help Families Afford Child Care

#NNPA BlackPress1 month ago

OP-ED: One Hundred Years of Black Workers Telling the Truth

#NNPA BlackPress1 month ago

Advancements in solar technology that are changing the way we power the world

Activism3 weeks ago

Oakland Post: Week of March 11 -17, 2026

#NNPA BlackPress4 weeks ago

Woman’s Search for Family’s Roots Leads to Ancestor John T. Ward – A Successful Entrepreneur and Conductor on the Underground Railroad

#NNPA BlackPress1 month ago

PRESS ROOM: Civil Rights TV Launches in Selma as the World’s First 24/7 Civil Rights Television Network

#NNPA BlackPress4 weeks ago

COMMENTARY: Women of Color Shape Our Past and Future

#NNPA BlackPress1 month ago

OP-ED: NNPA Launches 2026 “Leadership Matters” Video Series

Trending

Copyright ©2021 Post News Group, Inc. All Rights Reserved.