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Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs

By Je’Don Holloway-Talley The Birmingham Times It all started with a bow, said Taneka Gillard, founder of the iReign Special Needs Support Group Alabama. Her daughter, Reign, was born two months premature and spent months in the neonatal intensive care unit (NICU) in 2009 at St. Vincent’s Ascension Hospital in downtown Birmingham. To pass the […]
The post Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs first appeared on BlackPressUSA.

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Taneka Gillard, founder, iReign Special Needs Support Group Alabama, with daughter, Reign. (Amarr Croskey, For The Birmingham Times)

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By Je’Don Holloway-Talley
The Birmingham Times

It all started with a bow, said Taneka Gillard, founder of the iReign Special Needs Support Group Alabama. Her daughter, Reign, was born two months premature and spent months in the neonatal intensive care unit (NICU) in 2009 at St. Vincent’s Ascension Hospital in downtown Birmingham. To pass the time while her daughter was in the NICU, Gillard began to knit.

“I wanted to make her something special that she could wear while she was in the incubator, so I made her a bow,” Gillard said.

Reign was diagnosed with several conditions, and “she will never walk, or talk, or make any of the milestones that [typical children] do within the first days and years of their lives,” said Gillard. “As a parent, all the dreams you had for [your child change].”

While sitting with her daughter, Gillard said, “One bow turned into two”—and soon she’d created a variety of bows and knitted accessories in different colors to represent various conditions and disabilities in advocacy of special needs babies and children.

“Nurses and other mothers in the NICU would notice the bows in Reign’s hair and would ask me to make one for them or make them some booties,” Gillard said. “When Reign was about 3 years old, [in 2012], I started Reignbows, [an online accessory boutique].”

Starting the brand was not easy for Gillard, 50, a Long Island, New York, native, who said she often felt alone, under-resourced, ill-informed, and overlooked throughout the journey she and Reign, now 14, shared.

Click to view slideshow.

Becoming a Resource

Gillard not only created the bows but also established the iReign Special Needs Support Group Alabama, a Facebook-based advocacy and support group designed to be an interactive community for parents and caretakers of children with special needs.

“I’m trying to grow the group,” Gillard said of the online community that was founded this past spring. “I’m trying to spread the word to other parents because this group is for them. It was created by a parent for parents, and our motto is ‘We get you because we are you.’”

She added that iReign is a private Facebook group. “It’s not an open group because I’m trying to build an online community that is a safe space where caretakers can feel comfortable sharing their struggles, engaging, and being honest about their journeys. It’s a lifelong journey because many of our children’s diagnoses are chronic and will [span their lifetimes].”

Gillard created the group because she realized that it was difficult to find information pertaining to services for children with special needs.

“iReign is the group that gets information to the people,” she said. “We [provide] education on different disabilities from week to week. We look at and discuss different topics, different wins, and different struggles that parents and caretakers go through. The group is supporting families, giving them education, and, of course, advocating and teaching them how to advocate for themselves and their child’s needs.”

The group also gives parents and caretakers the opportunity to learn from one another.

“I learned early that I had to find resources for myself. I had to make the calls and do the research myself over the years, and it was overwhelming,” Gillard said. “[iReign allows] parents to learn from each other. One parent told me I could get doctors’ orders, [a sort of prescription], for diapers after Reign reached a certain age. Another neighbor told me about the Embrace Watch, [a U.S. Food and Drug Administration-cleared smartwatch that can be worn as a seizure alert system to detect some types of seizure and send an alert signal to caregivers]. … That’s why I started the iReign Special Needs Support Group Alabama—we need each other’s support.”

Being an Alabama-focused support group is intentional, the founder said: “When you talk about resources, you have to be specific to your state. When a group is generalized [in regard to location or demographics] you can’t just throw in a question because everybody lives in different states, so everybody’s going to have a different answer.”

Family Struggles

The name and phrase “iReign” represent strength and triumph, said Gillard, who also has two adult sons, ages 18 and 28. “Special needs children have a lot of struggles, but families as a whole struggle,” she said. “There are hurdles you have to jump over, and you have to reign over those obstacles by any means necessary.”

“[Reign] has a lot of disabilities and conditions,” Gillard said of her daughter, who has “quadriplegia, a form of paralysis that affects all four limbs, plus the torso. Her conditions also have included Dandy-Walker syndrome, (more here Dandy-Walker Alliance); hydrocephalus, (more here Hydrocephalus Association); cerebral palsy, (more here Cerebral Palsy Foundation); and epilepsy (more here Epilepsy Foundation).

“We have multiple diagnoses, and we can’t focus on one, and that’s part of what iReign is for,” said Gillard. “We’re telling parents, ‘Hey, we get it. We know [you can’t put a] basic blanket over all the conditions.’ There are more conditions and disabilities than cerebral palsy, epilepsy, Down syndrome, and autism. There are so many other conditions that are overlooked, and we don’t want to overlook any condition because they’re all important. That’s why we look at both the intellectual disability and the physical disability when we talk about children with disabilities or special needs.”

Gillard, a Pinson, Alabama, resident, who is also a twin, decided she would name her daughter Reign while she was pregnant.

“She was my first girl, and I already had two boys. I would say, ‘Reign and I are going to reign all over this house,’” Gillard said with a laugh. “I had all the dreams a mother has for herself and her baby girl. I knew she would be strong, and I knew she would take life by the horns, so I decided on Reign for her name.”

Despite the challenges, Gillard said Reign’s strength is exemplary, and she has triumphed over every surgery and obstacle they’ve faced. Still, those initial diagnoses, surgeries, and long hospital stays can be daunting.

“You go from living your everyday life to having to make sacrifice after sacrifice to take care of your child,” the mom said. “I had to sacrifice my job [as a licensed practical nurse (LPN) working as a school nurse], and I had to sacrifice school when I was going for my registered nurse degree. … I think that’s what pushed me to go back to school [in 2017] and major in psychology. … All of the stress takes a toll on you mentally, and I wanted to learn how to cope with it and help others.”

Becoming a Specialist

Gillard earned a Bachelor of Science degree in psychology in 2018 from the University of Alabama at Birmingham (UAB). She also attended American Public University online, where she obtained a child life specialist certification in 2020 in which she is clinically trained in the developmental impact of illness and injury.

“I went back to school to get my psychology degree and child life specialist certification because I want to help families and give them resources,” said Gillard, adding that spending time in hospitals helped her understand the importance of child life specialists.

“It’s the psychology of dealing with the family dynamics of special needs children or special treatments, children with cancer, or any health issue that going to have them in a hospital long term … to try to make their life in the hospital as close to at home or normal as possible,” she said.

Having been a rehabilitation nurse (a professional who assists individuals with a disability and/or chronic illness to help them attain and maintain maximum function prior to her daughter’s birth gave Gillard the skills she would need to administer home care to Reign.

“When I go to see the doctors and all the specialists, I like for them to give it to me straight, don’t sugarcoat anything, give it to me raw, and let me take it in and process it the way it needs to be processed,” she said. “I always tell people that God prepared me for my daughter and prepared me in my career, as well.”

Gillard wrote a book titled “iReign” just after her daughter was born: “[It is] about my struggles, what I’ve seen in other families, how I’ve seen it affect the family dynamic if you don’t have a support system, how it affects you [as an individual], and how it just changes your whole life.”

Gillard is also a licensed cosmetologist. “Doing hair really got me through a lot because I’m creative, and it gives me an outlet. When I had to give up my job and quit school, my hair career is what took me through, and it still gets me through a lot,” she said, adding that doing hair remains her side hustle.

“During the summer and breaks from school, I’m not able to work full-time because I don’t have in-home nurses and [Reign] is not in school, but I can always take her to the shop with me,” she added.

In addition, Gillard still runs the Reignbows online accessories boutique, which has been in existence for more than a decade. Through her brand, she advocates for and gives back to the special needs community, both of which are among her priorities.

“On the Reignbows side, it’s the same thing [we do through the iReign Special Needs Support Group Alabama Facebook community]—we’re educating and advocating—but it’s more of a sales platform,” Gillard said. “We always donate back to the community from the sales we make from Reignbows, whether it’s to a school, hospital, or any type of organization that’s local within Birmingham. … We’ve also donated to other states in the past, it’s just wherever the need is.”

To join the iReign Special Needs Support Group Alabama Facebook community, visit https://www.facebook.com/groups/specialneedssupportgroupalabama. To shop at the Reignbows online boutique, visit http://www.shopreignbowsonline.com, and follow Reignbows on Facebook and Instagram @reignbows. To get more information about both iReign and Reignbows, join the mailing list at http://www.shopreignbowsonline.com.

 

This article originally appeared in The Birmingham Times.

The post Taneka Gillard’s Advocacy for Her Daughter and Children with Special Needs first appeared on BlackPressUSA.

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COMMENTARY: The National Protest Must Be Accompanied with Our Votes

Just as Trump is gathering election data like having the FBI take all the election data in Georgia from the 2020 election, so must we organize in preparation for the coming primary season to have the right people on ballots in each Republican district, so that we can regain control of the House of Representatives and by doing so, restore the separation of powers and balance that our democracy is being deprived of.

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Dr. John E. Warren Publisher, San Diego Voice & Viewpoint
Dr. John E. Warren, Publisher San Diego Voice & Viewpoint Newspaper. File photo..

By  Dr. John E. Warren, Publisher San Diego Voice & Viewpoint Newspaper

As thousands of Americans march every week in cities across this great nation, it must be remembered that the protest without the vote is of no concern to Donald Trump and his administration.

In every city, there is a personal connection to the U.S. Congress. In too many cases, the member of Congress representing the people of that city and the congressional district in which it sits, is a Republican. It is the Republicans who are giving silent support to the destructive actions of those persons like the U.S. Attorney General, the Director of Homeland Security, and the National Intelligence Director, who are carrying out the revenge campaign of the President rather than upholding the oath of office each of them took “to Defend The Constitution of the United States.”

Just as Trump is gathering election data like having the FBI take all the election data in Georgia from the 2020 election, so must we organize in preparation for the coming primary season to have the right people on ballots in each Republican district, so that we can regain control of the House of Representatives and by doing so, restore the separation of powers and balance that our democracy is being deprived of.

In California, the primary comes in June 2026. The congressional races must be a priority just as much as the local election of people has been so important in keeping ICE from acquiring facilities to build more prisons around the country.

“We the People” are winning this battle, even though it might not look like it. Each of us must get involved now, right where we are.

In this Black History month, it is important to remember that all we have accomplished in this nation has been “in spite of” and not “because of.” Frederick Douglas said, “Power concedes nothing without a struggle.”

Today, the struggle is to maintain our very institutions and history. Our strength in this struggle rests in our “collectiveness.” Our newspapers and journalists are at the greatest risk. We must not personally add to the attack by ignoring those who have been our very foundation, our Black press.

Are you spending your dollars this Black History Month with those who salute and honor contributions by supporting those who tell our stories? Remember that silence is the same as consent and support for the opposition. Where do you stand and where will your dollars go?

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Why Black Parents Should Consider Montessori

BLACKPRESSUSA NEWSWIRE — I have found that there are some educational approaches that consistently provide a safer, more enriching, and more affirmative environment for Black children. The Montessori method, developed by Italian physician Maria Montessori and introduced to the U.S. in the early 20th century, is one such approach.

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By Laura Turner-Essel, PhD

As a mother of four children, I’ve done A LOT of school shopping. I don’t mean the autumn ritual of purchasing school supplies. I mean shopping for schools – pouring over promotional materials, combing through websites, asking friends and community members for referrals to their favorite schools, attending open houses and orientations, comparing curriculums and educational philosophies, meeting teachers and principals, and students who all claim that their school is the best.

But keep in mind – I’m not just a mom of four children. I’m a mom of four Black children, and I’m also a psychologist who is very interested in protecting my little ones from the traumatic experience that school can too often become.

For Black children in the United States, school can sometimes feel more like a prison than an educational institution. Research shows that Black students experience school as more hostile and demoralizing than other students do, that they are disciplined more frequently and more harshly for typical childhood offenses (such as running in the halls or chewing gum in class), that they are often labeled as deviant or viewed as deficient more quickly than other children, that teachers have lower academic expectations of Black students (which, in turn, lowers those students’ expectations of themselves), and that Black parents feel less respected and less engaged by their children’s teachers and school administrators. Perhaps these are some of the underlying reasons that Black students tend to underperform in most schools across the country.

The truth is that schools are more than academic institutions. They are places where children go to gain a sense of who they are, how they relate to others, and where they fit into the world. The best schools are places that answer these questions positively – ‘you are a valuable human being, you are a person who will grow up to contribute great things to your community, and you belong here, with us, exploring the world and learning how to use your gifts.’ Unfortunately, Black children looking for answers to these universal questions of childhood will often hit a brick wall once they walk into the classroom. If the curriculum does not reflect their cultural experiences, the teachers don’t appear to value them, and they spend most of their time being shamed into compliance rather than guided towards their highest potential, well…what can we really expect? How are they supposed to master basic academic skills if their spirits have been crushed?

Here’s the good news. In my years of school shopping, and in the research of Black education specialists such as Jawanza Kunjufu and Amos Wilson, I have found that there are some educational approaches that consistently provide a safer, more enriching, and more affirmative environment for Black children. The Montessori method, developed by Italian physician Maria Montessori and introduced to the U.S. in the early 20th century, is one such approach.

The key feature of Montessori schooling is that children decide (for the most part) what they want to do each day. Led by their own interests and skill levels, children in a Montessori classroom move around freely and work independently or with others on tasks of their own

choosing. The classroom is intentionally stocked with materials tailored to the developmental needs of children, including the need to learn through different senses (sight, touch/texture, movement, etc.). The teacher in a Montessori classroom is less like a boss and more like a caring guide who works with each child individually, demonstrating various activities and then giving them space to try it on their own. The idea is that over time, students learn to master even the toughest tasks and concepts, and they feel an intense sense of pride and accomplishment because they did it by themselves, without pressure or pushing.

I think that this aspect of the Montessori method is good for all kids. Do you remember the feeling of having your creativity or motivation crushed by being told exactly what to do, when to do it, how to do it, and why? The truth is that when presented with a new challenge and then given space, children actually accomplish a lot! They are born with a natural desire to learn. It is that spirit of curiosity, sense of wonder, and excitement to explore that Montessori helps to keep alive in a child. But that’s not the only reason that I think Black parents need to consider Montessori.

Fostering a love of learning is great. But more importantly, I think that Montessori students excel at learning to love. It begins with Montessori’s acknowledgement that all children are precious because childhood is a precious time. In many school systems, Black children are treated like miniature adults (at best) or miniature criminals (at worst), and are subjected to stressful situations that no kids are equipped to handle – expectations to be still and silent for long periods, competitive and high-stakes testing, and punitive classroom discipline. It’s easy to get the sense that rather than being prepared for college or careers, our children are being prepared to fail. Couple this with the aforementioned bias against Black children that seems to run rampant within the U.S. school system, and you end up with children who feel burned out and bitter about school by the time they hit 3rd grade.

In my experience, Montessori does a better job of protecting the space that is childhood – and all the joy of discovery and learning that should come along with that. Without the requirement that students “sit down and shut up,” behavioral issues in Montessori classrooms tend to be non-existent (or at least, the Montessori method doesn’t harp on them; children are gently redirected rather than shamed in front of the class). Montessori students don’t learn for the sake of tests; they demonstrate what they’ve learned by sharing with their teacher or classmates how they solve real-world problems using the skills they’ve gained through reading, math, or science activities. And by allowing children a choice of what to focus on throughout the day, Montessori teachers demonstrate that they honor and trust children’s natural intelligence. The individualized, careful attention they provide indicates to children that they are each seen, heard, and valued for who they are, and who they might become. Now that’s love (and good education).

As a parent, I’ve come to realize that many schools offer high-quality academics. Montessori is no different. Students in Montessori schools gain exposure to advanced concepts and the materials to work with these concepts hands-on. Across the nation, Montessori schools emphasize early literacy development, an especially important indicator of life success for young Black boys and men. Montessori students are provided with the opportunity to be

successful every day, and the chance to develop a sense of competence and self-worth based on completing tasks at their own pace.

But I have also learned that the important questions to ask when school shopping are often not about academics at all. I now ask, ‘Will my children be treated kindly? Will they be listened to? Protected from bias and bullying? Will they feel safe? Will this precious time in their lives be honored as a space for growth, development, awe, and excitement? Will they get to see people like them included in the curriculum? Will they be seen as valuable even if they don’t always ‘measure up’ to other kids on a task? Will they get extra support if they need it? Will the school include me in major decisions? Will the school leaders help to make sure that my children reach their fullest potential? Will the teacher care about my children almost as much as I do?’

Consistently, it’s been the Montessori schools that have answered with a loud, resounding ‘Yes!’ That is why my children ended up in Montessori schools, and I couldn’t be happier with that decision. If you’re a parent like me, shopping for schools with the same questions in mind, I’d urge you to consider Montessori education as a viable option for your precious little ones. Today more than ever, getting it right for our children is priceless.

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LIVE from the NMA Convention Raheem DeVaughn Says The Time Is Now: Let’s End HIV in Our Communities #2

Set against the backdrop of the NMA conference, Executive Officers from the National Medical Association, Grammy Award Winning Artist and Advocate Raheem DeVaughn, and Gilead Sciences experts, are holding today an important conversation on HIV prevention and health equity. Black women continue to be disproportionately impacted by HIV despite advances in prevention options. Today’s event […]

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Set against the backdrop of the NMA conference, Executive Officers from the National Medical Association, Grammy Award Winning Artist and Advocate Raheem DeVaughn, and Gilead Sciences experts, are holding today an important conversation on HIV prevention and health equity.

Black women continue to be disproportionately impacted by HIV despite advances in prevention options. Today’s event is designed to uplift voices, explore barriers to access, and increase awareness and key updates about PrEP, a proven prevention method that remains underutilized among Black women. This timely gathering will feature voices from across health, media, and advocacy as we break stigma and center equity in HIV prevention.

Additional stats and information to know:

Black women continue to be disproportionately affected by HIV, with Black women representing more than 50% of new HIV diagnoses among women in the U.S. in 2022, despite comprising just 13% of women in the U.S.

Women made up only 8% of PrEP users despite representing 19% of all new HIV diagnoses in 2022.

● Gilead Sciences is increasing awareness and addressing stigma by encouraging regular HIV testing and having judgment-free conversations with your healthcare provider about prevention options, including oral PrEP and long-acting injectable PrEP options.

● PrEP is an HIV prevention medication that has been available since 2012.

● Only 1 in 3 people in the U.S. who could benefit from PrEP were prescribed a form of PrEP in 2022.

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