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Software Turns Smartphones into Tools for Medical Research

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In this July 2, 2015 photo, asthma sufferer Elizabeth Ortiz, who uses the Asthma Health smartphone app daily to track her condition, poses for photos at her apartment, on New York's Lower East Side. Ortiz measures her lung power each day by breathing into an inexpensive plastic device and then typing the results into the app, which also asks if she’s had difficulty breathing or sleeping, or taken medication that day. (AP Photo/Richard Drew)

In this July 2, 2015 photo, asthma sufferer Elizabeth Ortiz, who uses the Asthma Health smartphone app daily to track her condition, poses for photos at her apartment, on New York’s Lower East Side. Ortiz measures her lung power each day by breathing into an inexpensive plastic device and then typing the results into the app, which also asks if she’s had difficulty breathing or sleeping, or taken medication that day. (AP Photo/Richard Drew)

Brandon Bailey, ASSOCIATED PRESS

 

 
SAN FRANCISCO (AP) — Jody Kearns doesn’t like to spend time obsessing about her Parkinson’s disease. The 56-year-old dietitian from Syracuse, New York, had to give up bicycling because the disorder affected her balance. But she still works, drives and tries to live a normal life.

Yet since she enrolled in a clinical study that uses her iPhone to gather information about her condition, Kearns has been diligently taking a series of tests three times a day. She taps the phone’s screen in a certain pattern, records a spoken phrase and walks a short distance while the phone’s motion sensors measure her gait.

“The thing with Parkinson’s disease is there’s not much you can do about it,” she said of the nervous-system disorder, which can be managed but has no cure. “So when I heard about this, I thought, ‘I can do this.'”

Smartphone apps are the latest tools to emerge from the intersection of health care and Silicon Valley, where tech companies are also working on new ways of bringing patients and doctors together online, applying massive computing power to analyze DNA and even developing ingestible “smart” pills for detecting cancer.

More than 75,000 people have enrolled in health studies that use specialized iPhone apps, built with software Apple Inc. developed to help turn the popular smartphone into a research tool. Once enrolled, iPhone owners use the apps to submit data on a daily basis, by answering a few survey questions or using the iPhone’s built-in sensors to measure their symptoms.

Scientists overseeing the studies say the apps could transform medical research by helping them collect information more frequently and from more people, across larger and more diverse regions, than they’re able to reach with traditional health studies.

A smartphone “is a great platform for research,” said Dr. Michael McConnell, a Stanford University cardiologist, who’s using an app to study heart disease. “It’s one thing that people have with them every day.”

While the studies are in early stages, researchers also say a smartphone’s microphone, motion sensors and touchscreen can take precise readings that, in some cases, may be more reliable than a doctor’s observations. These can be correlated with other health or fitness data and even environmental conditions, such as smog levels, based on the phone’s GPS locater.

Others have had similar ideas. Google Inc. says it’s developing a health-tracking wristband specifically designed for medical studies. Researchers also have tried limited studies that gather data from apps on Android phones.

But if smartphones hold great promise for medical research, experts say there are issues to consider when turning vast numbers of people into walking test subjects.

The most important is safeguarding privacy and the data that’s collected, according to ethics experts. In addition, researchers say apps must be designed to ask questions that produce useful information, without overloading participants or making them lose interest after a few weeks. Study organizers also acknowledge that iPhone owners tend to be more affluent and not necessarily an accurate mirror of the world’s population.

Apple had previously created software called HealthKit for apps that track iPhone owners’ health statistics and exercise habits. Senior Vice President Jeff Williams said the company wants to help scientists by creating additional software for more specialized apps, using the iPhone’s capabilities and vast user base — estimated at 70 million or more in North America alone.

“This is advancing research and helping to democratize medicine,” Williams said in an interview.

Apple launched its ResearchKit program in March with five apps to investigate Parkinson’s, asthma, heart disease, diabetes and breast cancer. A sixth app was released last month to collect information for a long-term health study of gays and lesbians by the University of California, San Francisco. Williams said more are being developed.

For scientists, a smartphone app is a relatively inexpensive way to reach thousands of people living in different settings and geographic areas. Traditional studies may only draw a few hundred participants, said Dr. Ray Dorsey, a University of Rochester neurologist who’s leading the Parkinson’s app study called mPower.

“Participating in clinical studies is often a burden,” he explained. “You have to live near where the study’s being conducted. You have to be able to take time off work and go in for frequent assessments.”

Smartphones also offer the ability to collect precise readings, Dorsey added. One test in the Parkinson’s study measures the speed at which participants tap their fingers in a particular sequence on the iPhone’s touchscreen. Dorsey said that’s more objective than a process still used in clinics, where doctors watch patients tap their fingers and assign them a numerical score.

Some apps rely on participants to provide data. Elizabeth Ortiz, a 48-year-old New York nurse with asthma, measures her lung power each day by breathing into an inexpensive plastic device. She types the results into the Asthma Health app, which also asks if she’s had difficulty breathing or sleeping, or taken medication that day.

“I’m a Latina woman and there’s a high rate of asthma in my community,” said Ortiz, who said she already used her iPhone “constantly” for things like banking and email. “I figured that participating would help my family and friends, and anyone else who suffers from asthma.”

None of the apps test experimental drugs or surgeries. Instead, they’re designed to explore such questions as how diseases develop or how sufferers respond to stress, exercise or standard treatment regimens. Stanford’s McConnell said he also wants to study the effect of giving participants feedback on their progress, or reminders about exercise and medication.

In the future, researchers might be able to incorporate data from participants’ hospital records, said McConnell. But first, he added, they must build a track record of safeguarding data they collect. “We need to get to the stage where we’ve passed the privacy test and made sure that people feel comfortable with this.”

Toward that end, the enrollment process for each app requires participants to read an explanation of how their information will be used, before giving formal consent. The studies all promise to meet federal health confidentiality rules and remove identifying information from other data that’s collected. Apple says it won’t have access to any data or use it for commercial purposes.

Some studies will always require in-person interaction or supervision by a doctor, experts say. But by reaching more people and gathering more data, advocates say smartphone apps can help doctors answer more subtle questions about a disease.

“Diseases like asthma are very complicated. They’re not caused by a single gene or environmental influence,” said Eric Schadt, a genomics professor who’s using an iPhone app to study asthma at New York’s Icahn School of Medicine at Mount Sinai. “The only hope you have of really going further in resolving this disease is for researchers to get to more people.”
Copyright 2015 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

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Black History

Five Hospitals Said No! Who Will Help Annette Henry Recover?

Annette Henry, a 67-year-old Oakland woman, is struggling to access essential medical care after a devastating stroke left her with a rare neuropathic pain syndrome. Despite medical documentation confirming her need for inpatient rehabilitation, five different Bay Area hospitals have denied her admission, often citing her inability to meet rigid therapy thresholds. Her family’s efforts to seek intervention from state and federal lawmakers have yielded no results, leaving Henry at home without a clear path to recovery. To see how these systemic failures are impacting her health, read more.

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Annette Henry. Photo by Mario Decuir.

A tangle of red tape and contradictions between health providers and Medicare rules have impeded an Oakland woman’s ability to recover from a stroke she had last year.

Her family – who are her caretakers – have reached out to various professionals and state and federal lawmakers for help to no avail.

At 67, Annette Henry needs inpatient stroke rehabilitation after a devastating stroke in May 2025. Since then, multiple Bay Area hospitals have denied it. She was accepted into a rehabilitation facility in June 2025 but discharged prematurely in July, in essentially the same condition.

Three hospitals where she was a patient pushed skilled nursing over inpatient rehabilitation. Two more declined referrals.

Now at home, Henry is caught in a system that measures her need for treatment against the limitations treatment should address.

Medical professionals have documented her need for a higher level of care.

In August 2025, a Medicare Quality Improvement Organization (QIO) overturned Henry’s discharge from an inpatient rehabilitation facility (IRF).

The QIO’s independent physician reviewer found she had not received the “intensive therapy program outlined on admission,” according to the Aug. 30, 2025, determination letter. Yet the decision did not secure her readmission or guarantee continued rehabilitation.

Henry has central post-stroke pain, a rare neuropathic pain syndrome that can make movement and touch intensely painful. Her pain specialist recommended inpatient rehabilitation alongside pain management.

Nevertheless, facilities have cited her inability to tolerate three hours of daily therapy as a reason to deny inpatient rehabilitation.

That practice raises questions about Medicare coverage policy. In Hooper v. Sullivan, No. H-80-99 (D. Conn. 1989), the court recorded the parties’ agreement that denials based on numerical utilization screens, diagnostic screens, treatment norms, the “three-hour rule,” or other “rules of thumb” were not appropriate.

CMS subsequently cited Hooper in its Aug. 7, 2009, final rule (74 Fed. Reg. 39762, 39794). The policy is also addressed in the Medicare Benefit Policy Manual, Chapter 1, Section 110, and CMS’s June 1 Review Choice Demonstration for IRF Services: Operational Guide.

These authorities underscore the need for individualized assessments rather than rigid numerical thresholds.

The central contradiction is stark: the pain and disability that make rehabilitation necessary have been cited as reasons to deny it. UCSF Stanyan’s April 7 discharge summary for Henry states that acute rehabilitation unit (ARU) placement was declined for “inability to tolerate three hours of therapy daily.” Without appropriate treatment, Henry risks further decline.

Her records document complications associated with prolonged immobility.

Orthopedics documented flexion contractures of the small and ring fingers on March 19.

Chest imaging on April 1 showed bibasilar dependent atelectasis, a condition involving reduced inflation of the lower portions of both lungs. These concerns can be examined through her medical records and photographs.

“What does a ‘not reasonable’ discharge look like?” her family asks. For them, it looks like an appeal decision recognizing a problem without ensuring a remedy: repeated referrals, denials and a patient still without the rehabilitation her treating professionals have recommended.

The family has sought help from the California Department of Public Health and the federal Office for Civil Rights to no avail. They contacted U.S. Rep. Lateefah Simon in June 2025, while Henry was in rehabilitation; Senator Alex Padilla in May 2026; and Senator Adam Schiff in September 2026.

DeCuir says the family received no meaningful assistance and was redirected to the QIO or advised working with a social worker after Henry had already been discharged.

The consequences extend beyond rehabilitation. The family reports that Henry has struggled to attend in-person specialist or any appointments and needs in-person evaluation and treatment for complications, recommended evaluations, health screenings and preventive care.

Her mobility limitations have become barriers to broader medical care.  Every office tells her their office is not set up to accommodate her.  This has happened with specialty care, out-patient services, screenings and physical therapy.

Henry is a Black woman on Medicare, and her family believes her experience raises concerns about unequal access to intensive rehabilitation. Research has documented disparities in discharge to inpatient rehabilitation rather than skilled nursing, underscoring the importance of individualized review.

CMS, state regulators and healthcare providers should examine Henry’s records, assess her needs on their clinical merits and explain how the applicable coverage standards were applied, and whether they are being enforced.

Rehabilitation is not a reward for patients who can already tolerate treatment. It is care intended to help people recover function. Henry’s case asks whether a system designed to support recovery can leave a patient without a path to it.

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Business

SEIU Local 1000 and State of California Will Continue to Negotiate New Labor Contract

Thousands of California state employees represented by SEIU Local 1000 recently staged a one-day walkout to protest stalled contract negotiations with Governor Gavin Newsom’s administration. The union, which represents approximately 100,000 public workers, is demanding a 20% wage increase over three years and an end to mandatory four-day in-person work requirements. While the initial strike has concluded, union leadership warns that further demonstrations are likely if the state continues to reject their demands for better pay and telework flexibility. Negotiations are expected to continue as both sides seek a resolution. Read more.

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California state workers staged a one-day strike Oct. 21 to protest alleged unfair labor practices and stalled contract negotiations over wages, remote work requirements and health care costs. The workers' previous contract expired June 30. CBM photo by Antonio Ray Harvey.

After the Service Employees International Union (SEIU) Local 1000 labor contract expired June 30 and talks with Gov. Gavin Newsom’s administration stalled, the union stepped up its efforts to secure a new agreement, saying its demands had gone unheeded. 

On Oct. 21, thousands of state employees represented by SEIU Local 1000 staged a one-day walkout to protest alleged unfair labor practices during negotiations with Gov. Gavin Newsom’s administration. 

Although the strike has ended, SEIU Local 1000 President Anica Walls said further demonstrations or an expanded strike are highly likely if contract negotiations remain stalled. The union represents approximately 100,000 public employees statewide. 

“We are out here because our jobs matter,” Wells said. “If they continue to refuse to bargain with us in good faith, we are prepared to escalate.” 

Sen. Lola Smallwood-Cuevas (D-Los Angeles) expressed support for SEIU Local 1000’s labor action in an Instagram post, emphasizing the importance of fair treatment for workers. 

“I stand in complete solidarity with SEIU Local 1000,” Smallwood-Cuevas stated. “More than 100,000 state workers they represent are on strike today fighting for good-faith bargaining, fair treatment, and a contract that reflects the value of the essential public services they provide every day—all things that should be a given for the workers our state relies on the most.” 

Smallwood-Cuevas, a member of the California Legislative Black Caucus (CLBC) added, “When California’s workers hold the line, the whole nation pays attention.” 

According to union representatives, SEIU Local 1000 is seeking a contract that addresses rising living costs and provides greater workplace flexibility. The union is demanding a 20% wage increase over three years and an end to Gov. Gavin Newsom’s requirement that state employees work in person four days a week.

The union is also seeking increased state contributions toward employee health care benefits to reduce workers’ out-of-pocket costs. 

On Sept. 18, Newsom vetoed Assembly Bill 1729, authored by Assemblymember Alex Lee (D-San Jose), which sought to expand telework opportunities for state employees. 

The bill would have required state agencies to offer telework options or provide written justifications for requiring employees to work in person. Supporters argued that telework could save taxpayers approximately $225 million annually by reducing office space and parking costs while lowering vehicle emissions and improving employee retention. 

Newsom said the legislation would limit state departments’ flexibility to manage their workforces and evaluate telework exemptions individually. He has also emphasized the benefits of in-person collaboration. 

“I want people to come back to work, reengage, rediscover, collaborate, coordinate, develop relationships, friendships, and fall in love,” Newsom said in July. “You get three-day weekends. Four years ago, that would’ve been a triumph. Now it’s a burden.” 

Union organizers described the Oct. 21 walkout as a one-day unfair labor practice strike, rather than an indefinite work stoppage. The action was intended to demonstrate solidarity and increase pressure on the state during negotiations. 

SEIU Local 1000 has been without a contract since its previous three-year agreement expired June 30. Negotiations are expected to resume.

Responding to the statewide walkout, the California Department of Human Resources (CalHR) said it “remains focused on achieving a fair and responsible agreement with SEIU Local 1000 and continues to be available at the bargaining table.” 

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Black History

Oakland Strong: Building Champions and Healthier Generations

Entrepreneur Mike Jenkins is revitalizing youth wellness in Oakland through Oakland Strong, a world-class strength-training facility in Jack London Square. After providing a decade of free training in Fruitvale, the program moved and rebranded while continuing to produce national and international weightlifting champions. Jenkins aims to counter community health challenges by teaching Olympic-style lifting and nutrition to children ages 8 to 18. As the program seeks new ways to sustain its free services, local partnerships are forming to support these elite young athletes. Read more.

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Mike Jenkins is a serial entrepreneur with a vision to make a lasting impact in Oakland.

Raised in a military family in the Pinole area, Jenkins played basketball at Merritt College before continuing his athletic career at Sacramento State.

His lifelong interest in health and wellness led him to consider a troubling reality: as members of the Black community age, health challenges often increase. Jenkins believes investing in health is an investment in wealth, and he has made it his mission to give Oakland’s youth a stronger foundation for life.

Years ago, Jenkins invested in young people by building Speed Power Strength, a world-class strength-training facility in the Fruitvale neighborhood. For 10 years, the facility served hundreds of children, providing training entirely free of charge. Displaced by gentrification, the program eventually found a new home in Jack London Square.

That move inspired a new name: Oakland Strong, reflecting both the program’s mission and its pride in the city it represents.

“When we found the new home, I needed to put a spotlight on what we were doing– producing the strongest kids in Oakland – so I named our new location Oakland Strong,” Jenkins explained. “We are known nationally and internationally, so when we compete, our city’s name is on our chest.”

Through Olympic weightlifting, governed nationally by USA Weightlifting, the program has developed an extraordinary record. Its athletes have earned 10 national championships, a team national championship, and international titles. Today, two Oakland Strong athletes are Olympic hopefuls.

This past summer, Oakland had three athletes at the Olympic Training Center in Colorado Springs at the same time. One was Olympic figure skating champion Alysa Liu. The other two were Oakland Strong’s Robert Whitlock and Rucker Johnson, there for a weightlifting camp for Olympic hopefuls.

Whitlock, an Oakland Technical High School student, began training at age 10. Now a three-time consecutive national champion, two-time Pan American champion, and Team USA representative, Whitlock also holds an American record while maintaining straight A’s in school.

“If Oakland can’t support these kinds of kids, then what are we doing?” Jenkins asks.

Oakland Strong continues offering free training in Jack London Square to young people ages 8-18. The program welcomes girls as well as boys, with approximately 12 kids currently participating with room for 20.

With limited city support for free youth programs, Jenkins must find other ways to sustain the work.

When Carlyle Chicken Wings opened nearby, he approached the owner with an idea connecting nutrition and community investment. Because Oakland Strong teaches healthy eating alongside athletic training, they developed the Oakland Strong Bowl, a protein-focused meal. Carlyle will contribute $2 from each bowl sold to support the program.

For Jenkins, the mission extends far beyond medals and records. He wants to create generational health by teaching young people habits they can carry into adulthood and share with their families.

The strongest legacy, he believes, is not simply producing champions, but building healthier generations who understand their worth, their potential, and the importance of investing in themselves.

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