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Sickle Cell Advocates Sound Alarm as Georgia Bill Advances, Federal Dollars Bypass Black-Led Groups

BLACKPRESSUSA NEWSWIRE – As funding for sickle cell programs grows, Black-led organizations say they remain overlooked—raising questions about who truly benefits from increased investment.

Published

2 months ago

April 7, 2026

Oakland Post

By Alexandria Green Jones

As momentum builds around new sickle cell legislation in Georgia, advocates say a deeper issue continues to threaten the very communities the disease impacts most. Black-led organizations on the front lines are still being shut out of critical funding.

The urgency grew on March 26, 2026, when the Sickle Cell Disease Protection Act advanced out of the Georgia Senate Health and Human Services Committee. While the bill still must clear the Senate floor, return to the House, and ultimately reach the governor’s desk, its movement has renewed attention around the fight for equitable support for sickle cell patients and the organizations serving them.

At the same time, frustration is mounting over how federal sickle cell funding is being distributed. In February, Congress approved a fiscal package that included more than $20 million for sickle cell programs. But many Black-led organizations doing direct, community-based work say they are not seeing those dollars.

Instead, advocates argue, much of the money is being directed to larger white-led organizations that are often far removed from the day-to-day realities of families living with sickle cell disease and may not reinvest those resources directly back into the communities most affected.

For Dr. Lakiea Bailey, the issue is both personal and political.

Diagnosed with sickle cell disease at age 3, Bailey endured multiple surgeries and repeated hospitalizations throughout her life. Despite those challenges, she went on to earn a bachelor’s degree in biochemistry and molecular biology and later a doctorate in molecular hematology and regenerative medicine.

“As someone who has lived with sickle cell disease since childhood, I know firsthand that community support can mean the difference between surviving and truly living. That is why investing in community-based organizations is not optional. It is essential,” said Dr. Bailey.

After seeing firsthand how many people living with sickle cell disease struggled to access adequate treatment and resources, Bailey founded the Sickle Cell Community Consortium. The organization was created to bring together patients, caregivers, community-based organizations, researchers, and health care leaders to address the urgent and often overlooked needs of the sickle cell community.

Now, as legislative conversations continue, Bailey and other advocates are calling attention to what they see as a painful contradiction: sickle cell disease is finally gaining more visibility in policy spaces, but the Black-led groups with the deepest roots in impacted communities are still being left out of the funding conversation.

“For too long, Black-led organizations have been expected to do the hardest work with the fewest resources,” said Dr. Bailey. “It is deeply troubling to see millions allocated for sickle cell programs while the very organizations rooted in the community are being shut out. If the goal is to help patients, the dollars must reach the people doing the work on the ground every single day.”

That exclusion, advocates say, has real consequences. Community-based organizations are often the first to help families navigate care, connect patients to resources, provide education, and push for policy change. Without equitable access to funding, many say the work becomes harder to sustain, even as the need continues to grow.

The debate also highlights a broader concern that has long followed public health funding, whether resources meant to address disparities are truly reaching the people and institutions closest to the problem.

For Bailey, the answer must include intentional investment in Black-led organizations with proven ties to the sickle cell community.

“We cannot keep celebrating progress in legislation while ignoring the inequity in funding. Visibility without investment is not justice,” Dr. Bailey explained. “If lawmakers and decision-makers are serious about changing outcomes for sickle cell patients, then they must also be serious about funding the Black-led organizations. The Black community built the advocacy, carried the burden, and sounded the alarm on sickle cell. We should not have to beg for a seat at a table we built.”

As Georgia lawmakers weigh the future of the Sickle Cell Disease Protection Act, advocates say the larger question cannot be ignored: Who is being trusted to lead this work, and who is being left behind?

For families living with sickle cell disease, that answer could shape far more than policy. This could determine the alignment of awareness with action and the allocation of funding to the communities that have been fighting this battle for generations.

From April 7 to 11, Dr. Bailey will host the largest convening of Sickle Cell patients, Advocates, physicians, and the community at The Westin Atlanta Airport, 4736 Best Road, Atlanta, Georgia.

“This moment represents more than a convening; it represents alignment,” said Dr. Lakiea Bailey, Founder and Executive Director of the Sickle Cell Consortium. “By bringing together leadership, community voice, and national strategy in one coordinated effort, we are creating space for real progress and collective impact.”

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Study: Waiting Lists for Child Care Assistance Nearly Doubled

BLACKPRESS USA NEWSWIRE — “Since the expiration of tens of billions of dollars in federal child care funding in 2023 and 2024, an already fragile child care system has been pushed even closer to the brink.”
The post Study: Waiting Lists for Child Care Assistance Nearly Doubled appeared first on BlackPressUSA.

Published

4 days ago

June 8, 2026

Oakland Post

By National Women’s Law Center

The National Women’s Law Center released its annual State Child Care Assistance Policies report, finding that the number of children placed on waiting lists for federally funded child care assistance nearly doubled between 2024 and 2025 — and that number has only continued to grow.

The report serves as a key resource for state lawmakers, advocates, and policymakers by tracking state child care assistance policies and identifying where states are strengthening support for families and early educators — or falling behind.

“This deeply troubling increase in the number of children on child care waiting lists is the result of a failure to invest in this crucial sector,” said Karen Schulman, senior director of state child care policy and author of the report. “Since the expiration of tens of billions of dollars in federal child care funding in 2023 and 2024, an already fragile child care system has been pushed even closer to the brink.”

Key findings in the report related to waiting lists for child care assistance include:

• 17 states had waiting lists or a freeze on intake for child care assistance in February 2025, up from 13 states in February 2024.

• Approximately 106,700 children nationwide were added to waiting lists between February 2024 and February 2025, bringing the total to 225,500 children in February 2025 — a 90 percent increase compared to February 2024.

• The numbers climbed even further between February 2025 and summer/fall 2025, with more than 175,000 additional children added to state waiting lists in just a few months — a 78 percent increase.

• At least seven states newly began placing families on waiting lists or freezing intake, while at least 10 additional states saw their waiting lists grow, after February 2025.

The report also includes state-by-state data on key child care assistance policies, including income eligibility limits, parent copayments, provider payment rates, and eligibility policies for parents searching for work.

Click the link to learn more: Warning Signs: State Child Care Assistance Policies 2025.

The post Study: Waiting Lists for Child Care Assistance Nearly Doubled appeared first on BlackPressUSA.

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Venus Williams Calls a Sabalenka Exit a Tragedy

ROLLING OUT — Crucially, Williams did not read the comment as a real farewell. She said she did not believe Sabalenka truly wanted to leave, calling such an outcome a loss for both the player and the sport.
The post Venus Williams Calls a Sabalenka Exit a Tragedy appeared first on BlackPressUSA.

Published

6 days ago

June 7, 2026

Oakland Post

The seven-time major champion read frustration, not a real goodbye, in the world No. 1’s words

By David Kesiena | Rolling Out

When the world’s top-ranked player said she wanted to walk away from the sport, Venus Williams chose empathy over alarm.

Aryna Sabalenka’s blunt remark after her French Open quarterfinal collapse rattled plenty of fans, but Williams heard something different in it. The seven-time Grand Slam champion treated the comment as the raw reaction of a hurting athlete rather than a serious signal about her future.

The collapse that triggered the comment

Sabalenka looked headed for a routine win over Diana Shnaider. She took the opening set 6-3 and built a commanding lead in the second, climbing to 4-1 and later serving for the match at 5-4 while sitting just two points from victory.

Then everything unraveled. Shnaider stormed back to steal the second set 7-5 and bageled the world No. 1 in the third, with Sabalenka dropping 12 of the final 13 games in gusty conditions that reached around 26 mph. The 3-6, 7-5, 6-0 result sent Shnaider into her first Grand Slam semifinal and extended Sabalenka’s long wait for a maiden Roland Garros title.

In the aftermath, Sabalenka did not soften her feelings. She told reporters she had no thoughts and no emotions left and felt like quitting on the spot. She described being stuck in a deep, dark mental hole during the match, unable to find her way back.

What Venus Williams said about Sabalenka

Williams reacted with understanding. She admitted the moment made her sad and said she had been swept up in Sabalenka’s emotions, feeling a surge of empathy for her. She praised the Belarusian for laying everything bare on court, where every feeling shows.

Crucially, Williams did not read the comment as a real farewell. She said she did not believe Sabalenka truly wanted to leave, calling such an outcome a loss for both the player and the sport. Rather than scold her, Williams offered a gentle observation about the rhythm of professional tennis. She suggested players might benefit from a little more time to gather themselves before stepping in front of the cameras, a quiet acknowledgment that athletes are routinely asked to dissect painful defeats before the sting has faded.

Sabalenka walks it back

The story did not end on that bleak note. Within days, Sabalenka signaled she was not actually quitting, framing the press-conference outburst as heat-of-the-moment honesty rather than a plan. At the time of the loss she had also left the door open, saying she would see how she felt in a few days and hoped to get back on track mentally. The walk-back lined up with how Williams had read the situation from the start.

It is not the first time a Paris quarterfinal has pushed Sabalenka to her limit. In 2024 she exited at the same stage and skipped her press conference entirely because of illness, with the tour later releasing her quotes on her behalf. The pattern underscores how heavily this particular tournament has weighed on her despite deep runs in recent years.

For now, attention shifts to the grass. Wimbledon offers Sabalenka a quick chance to reset, and a strong showing there would turn this French Open meltdown into a footnote rather than a turning point.

Originally published by Rolling Out — https://rollingout.com.

The post Venus Williams Calls a Sabalenka Exit a Tragedy appeared first on BlackPressUSA.

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COMMENTARY: Using Art, Healing, And Community to Transform Mental Health Dialogue

THE CAROLINIAN — Operating at the intersection of the arts and mental health, Darkness RISING uses music, storytelling, wellness programming, and community engagement to inspire healing while addressing barriers that have historically prevented many Black Americans from accessing mental health support.
The post COMMENTARY: Using Art, Healing, And Community to Transform Mental Health Dialogue appeared first on BlackPressUSA.

Published

6 days ago

June 7, 2026

Oakland Post

By Judaea Ingram | Special to The Carolinian

RALEIGH, N.C. – Music filled the air as families danced through the crowd, children gathered around activity stations, and community members explored wellness resources from local organizations. Black-owned businesses lined the streets while people stopped for chair massages, conversations, and moments of connection inside the wellness suite.

At the center of the event stood a simple but powerful reminder:

“You Matter.”

For Darkness RISING, those words represent far more than a slogan. They reflect the organization’s mission to break the stigma surrounding mental health in the Black community while creating spaces centered on healing, honesty, and hope.

Operating at the intersection of the arts and mental health, Darkness RISING uses music, storytelling, wellness programming, and community engagement to inspire healing while addressing barriers that have historically prevented many Black Americans from accessing mental health support.

The organization hosts a variety of programs and events throughout the year, including block parties, wellness workshops, mixers, kickoff events, community classes, and Darkness RISING: Live — a free annual arts and wellness festival now celebrating its ninth year.

The festival combines entertainment with healing-centered resources, featuring live music, dancing, singing, food trucks, Black vendors, children’s activities, mental health resources, wellness spaces, and opportunities for open conversations about mental health.

While the events may feel celebratory on the surface, organizers say the deeper purpose is creating safe spaces where people can feel comfortable discussing mental health without fear of judgment.

Darkness RISING also provides free nationwide resources, including a Black Mental Health Resource Packet, a Black Mental Health Provider Database, and its “Find Me a Therapist” initiative, which helps connect individuals with culturally competent care.

The organization’s work is rooted in addressing longstanding inequities that continue impacting mental health access within Black communities.

Historically, segregation, redlining, racial discrimination, incarceration, poverty, and unequal healthcare access have contributed to higher rates of behavioral health challenges while simultaneously limiting access to proper treatment and support. Darkness RISING approaches those issues through what organizers describe as a transformative justice lens, focusing on healing rather than punishment and creating equitable wellness opportunities for marginalized communities.

Its REBUILD program specifically supports justice-involved and formerly incarcerated people of color through free therapy and wellness support, while the REBUILD Youth program focuses on young people impacted by Adverse Childhood Experiences, also known as ACEs.

For Rudolph, therapy became life-changing after decades of incarceration and years of rejection after returning home.

“Came home in 2015, started my own computer company, investing in real estate, did the normal thing and got some jobs here and there and was met with rejection after rejection and people telling me I am not a good person,” Rudolph shared. “Even had a rejection in church.”

He said one of the hardest battles became overcoming the mental barriers created during incarceration.

“I got in touch with a couple of friends, and they explained to me how I had to get over the mental hurdles and get rid of the way my prison mindset was in order to survive and become successful,” he said.

Rudolph later moved to North Carolina hoping for a fresh start, but the struggle continued.

“Things were looking bad,” he said. “Could not get a job. The struggle was real.”

Eventually, therapy and support through organizations like Darkness RISING helped begin his healing process. He said working alongside other justice-involved men through therapy gave him the ability to rebuild mentally while finding community with people who understood his experiences.

Stories like Rudolph’s reflect the foundation behind Darkness RISING’s mission: ensuring people feel seen, supported, and worthy of healing regardless of their background or circumstances.

Community members who attend the organization’s events often describe them as emotionally transformative.

Some participants say Darkness RISING encouraged them to seek therapy for the first time, while others say the organization gave them a safe space to openly discuss struggles they previously kept hidden.

“I have been encouraged by the beautiful, generous, brave and open individuals who come together and use their talents to create art, share personal experiences and provide hope to those who may be struggling with mental health,” one participant shared.

By combining art, wellness, education, and community outreach, Darkness RISING continues changing how mental health conversations happen within the Black community.

Not through silence.

But through healing, honesty, connection, and joy.

Originally published by The Carolinian — https://caro.news.

The post COMMENTARY: Using Art, Healing, And Community to Transform Mental Health Dialogue appeared first on BlackPressUSA.