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Lobbyists Push for Better HIV/AIDS Care

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According to the latest data released by the Center for Disease Control only 25 percent of people living with HIV in the U.S. have achieved viral suppression. In other words, three out of four people living with HIV nationwide still face significant health disparity gaps that continue to widen, and are related to both race and age.

 

 

African Americans are the least likely to be in ongoing care and to have the virus under control. Younger African Americans especially are least likely to have their virus in check. HIV care and viral suppression has been shown to improve with age, except among African Americans, aged 65 and older.

Eliminating gaps in care has become even more important as we have learned more about the impact of treatment on preventing the spread of HIV. We cannot adequately address gaps in care until Ryan White funding is following the epidemic.

The misguided decision to refuse the Medicaid expansion in many GOP led states, could disproportionately harm vulnerable populations. As HIV/AIDS continues to affect African Americans more than any other ethnic group in the U.S., advocates from southern states and rural America are concerned about poor life outcomes for people living with HIV in their cities.

For those left without coverage, the AIDS Assistance Program (ADAP) and The Ryan White Program, two federally funded programs many consider to be lifesavers, will continue to provide services.

Last week, I joined HIV advocates from areas that will have to rely on Ryan White Programs and we lobbied in Washington, successfully getting Congress to introduce a bill, “The Ryan White Patient Equity and Choice Act” that will require The Department of Health and Human Services (HHS), to study their formula and address the problem, of a disease that is geographically changing. The epidemic is really affecting African Americans worse in southern states as well as states where access to care, racism and stigma remain the biggest barriers.

Geneva Galloway an advocate from Charlotte, NC., has lived with HIV for 28 years and works with the Faith community there. Galloway says her fight there is stigma. “The stigma in the south, she says, “is worse than the disease itself”

The Ryan White Comprehensive AIDS Resource Emergency Act was originally passed by

Ryan White became  a National poster Child for HIV/AIDS in the U.S. in the early 80s after contracting the HIV/AIDS infection through blood transfusions. He died one month before his high school graduation.

Ryan White became a National poster Child for HIV/AIDS in the U.S. in the early 80s after contracting the HIV/AIDS infection through blood transfusions. He died one month before his high school graduation.

Congress in 1990. In the two decades since then, four reauthorizations of the Act have reflected the evolution of HIV/AIDS. In 1996 the Act ensured access to highly active antiretroviral therapy through a drug assistant program (ADAP).

Ed Jones from Texas, is hoping the bill passes, and felt it was time to make changes to Ryan White.

“The status quo harms Texas and many other states,” said Jones. “We cannot adequately address gaps in care because Ryan White funding is not following the epidemic.”

In 2000, reauthorization provided funds to ensure access to care. In 2006, the reauthorization sought to mitigate the high impact of the disease on African Americans and other minority communities. New incentives for HIV care retention were created in 2009. The new Act will evenly distribute the funds to all states based on the epidemic and not population.

Art Jackson, an HIV advocate from Fayetteville, North Carolina who celebrates 25 years of living after his diagnosis, says the bill will help more like him get the HIV care they need.

“This bill can help ensure that thousands in my area where the epidemic is growing can get the adequate HIV care,” said Jackson.

Eliminating gaps in care has become even more important as we have learned more about the impact of treatment on preventing the spread of HIV.

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Activism

Oakland Post: Week of April 24 – 30, 2024

The printed Weekly Edition of the Oakland Post: Week of April 24 – 30, 2024

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To enlarge your view of this issue, use the slider, magnifying glass icon or full page icon in the lower right corner of the browser window.

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Alameda County

DA Pamela Price Stands by Mom Who Lost Son to Gun Violence in Oakland

Last week, The Post published a photo showing Alameda County District Attorney Pamela Price with Carol Jones, whose son, Patrick DeMarco Scott, was gunned down by an unknown assailant in 2018.

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District Attorney Pamela Price with Carol Jones
District Attorney Pamela Price with Carol Jones

Publisher’s note: Last week, The Post published a photo showing Alameda County District Attorney Pamela Price with Carol Jones, whose son, Patrick DeMarco Scott, was gunned down by an unknown assailant in 2018. The photo was too small for readers to see where the women were and what they were doing.  Here we show Price and Jones as they complete a walk in memory of Scott. For more information and to contribute, please contact Carol Jones at 510-978-5517 at morefoundation.help@gmail.com. Courtesy photo.

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City Government

Vallejo Welcomes Interim City Manager Beverli Marshall

At Tuesday night’s Council meeting, the Vallejo City Council appointed Beverli Marshall as the interim city manager. Her tenure in the City Manager’s Office began today, Wednesday, April 10. Mayor Robert McConnell praised Marshall’s extensive background, noting her “wide breadth of experience in many areas that will assist the City and its citizens in understanding the complexity of the many issues that must be solved” in Vallejo.

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Beverli Marshall began her first day with the City on April 10. ICMA image.
Beverli Marshall began her first day with the City on April 10. ICMA image.

Special to The Post

At Tuesday night’s Council meeting, the Vallejo City Council appointed Beverli Marshall as the interim city manager. Her tenure in the City Manager’s Office began today, Wednesday, April 10.

Mayor Robert McConnell praised Marshall’s extensive background, noting her “wide breadth of experience in many areas that will assist the City and its citizens in understanding the complexity of the many issues that must be solved” in Vallejo.

Current City Manager Michael Malone, whose official departure is slated for April 18, expressed his well wishes. “I wish the City of Vallejo and Interim City Manager Marshall all the best in moving forward on the progress we’ve made to improve service to residents.” Malone expressed his hope that the staff and Council will work closely with ICM Marshall to “ensure success and prosperity for the City.”

According to the Vallejo Sun, Malone stepped into the role of interim city manager in 2021 and became permanent in 2022. Previously, Malone served as the city’s water director and decided to retire from city service e at the end of his contract which is April 18.

“I hope the excellent work of City staff will continue for years to come in Vallejo,” he said. “However, recent developments have led me to this decision to announce my retirement.”

When Malone was appointed, Vallejo was awash in scandals involving the housing division and the police department. A third of the city’s jobs went unfilled during most of his tenure, making for a rocky road for getting things done, the Vallejo Sun reported.

At last night’s council meeting, McConnell explained the selection process, highlighting the council’s confidence in achieving positive outcomes through a collaborative effort, and said this afternoon, “The Council is confident that by working closely together, positive results will be obtained.” 

While the search for a permanent city manager is ongoing, an announcement is expected in the coming months.

On behalf of the City Council, Mayor McConnell extended gratitude to the staff, citizen groups, and recruitment firm. 

“The Council wishes to thank the staff, the citizens’ group, and the recruitment firm for their diligent work and careful consideration for the selection of what is possibly the most important decision a Council can make on behalf of the betterment of our City,” McConnell said.

The Vallejo Sun contributed to this report.

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