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Ex-NBA Coach Spreads the Word About Rare Heart Disease Affecting Blacks

A defensive specialist, Chaney won an NBA title with the Celtics in 1969 and 1974. After he retired in 1979, he spent 22 years coaching, including 12 years as a head coach in the NBA for the Los Angeles Clippers, Houston Rockets, Detroit Pistons, and New York Knicks.

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Don Chaney learned to play basketball while growing up in Baton Rouge, La. He became a skilled baller and played the game at the University of Houston. Then, he went on to have a successful career as a point guard — and later a coach — in the National Basketball Association (NBA).

      At 75, when Chaney was retired and ready to settle down and enjoy his newfound leisure when he had to acquire knowledge about an issue that has nothing to do with sports and everything to do with healthy living. 

     In 2019, Chaney was diagnosed with hereditary Transthyretin Amyloid Cardiomyopathy (ATTR-CM), a rare but life-threatening disease that can lead to heart failure. It disproportionately impacts African Americans.

     Now, Chaney looks at raising awareness about the disease as a new style of coaching. He said the rare disease is something that “the average Black family” should take “extremely seriously.”

      “It is a process. Every time I have an opportunity to bring it up and spread awareness about the disease, I try my best to do it,” Chaney told California Black Media (CBM) during a virtual interview. “The biggest thing is that the Black community has the highest rate of heart disease in the United States. Doctors are seldom aware of the fact that this particular disease exists. They don’t look for it. So, if you’re not looking for (ATTR-CM) you’re not going to get the correct diagnosis.”

       ATTR-CM is an underdiagnosed and potentially fatal disease, according to the American Heart Association, the nation’s oldest and largest voluntary organization dedicated to fighting heart disease and stroke. 

     The disease is characterized by deposits of amyloid protein fibrils in the walls of the left ventricle, the main pumping chamber of the heart. ATTR-CM, the amyloid protein is made of transthyretin, a protein found in the blood that transports important body fluids.  

      The amyloid protein deposits cause the heart walls to become stiff, resulting in the inability of the left ventricle to properly relax, fill with blood and adequately squeeze to pump blood out of the heart. 

       Dr. Kevin Williams, the chief medical officer for rare disease at the biotechnology company Pfizer, says his research shows that ATTR-CM’s symptoms are similar to those of more common causes of heart failure such as fatigue, shortness of breath, and swelling in the lower legs.

     He also said that the symptoms are not commonly perceived to be linked to a heart condition —‌ like carpal tunnel syndrome (numbness, tingling, or pain in the fingers), bicep tendon rupture, gastrointestinal issues (constipation, diarrhea, and nausea), and lumbar spinal stenosis (a narrowing of the open spaces in the lower spine). 

     “All of these factors can lead to delays in diagnosis or misdiagnosis,” said Williams, who is a Black medical doctor. “In the African American community, it’s important to fully explore the underlying cause of these conditions with the help of a cardiologist.”

     After his collegiate days at the University of Houston expired, Chaney was selected the 12th pick in the first round of the 1968 NBA Draft by the Boston Celtics. The Houston Mavericks of the American Basketball Association also drafted him that year.

     A defensive specialist, Chaney won an NBA title with the Celtics in 1969 and 1974. After he retired in 1979, he spent 22 years coaching, including 12 years as a head coach in the NBA for the Los Angeles Clippers, Houston Rockets, Detroit Pistons, and New York Knicks.

     Since 2004, Chaney has relatively enjoyed retirement, but his heart condition was always a concern. Fatigue, palpitations, shortness of breath, and swollen ankles were something he thought was years of physically playing the game of basketball. He learned it was much deeper than the sports.

     “I was dealing with all these issues, but I hadn’t really made all the connections,” Chaney told CBM. “I just assumed all the symptoms were from my years of pounding on the floor in professional basketball. I thought it was normal. If I had known this, I could have started treatment earlier.”

     While he made numerous visits to the doctors to attend to his medical issues, Chaney said he started to “put the pieces” together after he began to share his family’s past with cardiologists.

     Chaney’s mother and grandmother passed away due to heart disease. Back when they were alive, he recalled them complaining about having the same symptoms – fatigue, shortness of breath, swollen ankles and knees – he was experiencing. 

    “The symptoms are similar,” Chaney said. ‘When you throw in carpal tunnel syndrome along with fatigue and palpitations… that pushes you into another category. So, I had some tests and found out the scary part that it was hereditary. We went on to try to manage it from that point on.”

    There are two types of ATTR-CM, wild-type, and hereditary. Wild-type is thought to be the most common form of ATTR-CM and is mostly associated with men over the age of 60. 

     Hereditary ATTR-CM is inherited from a relative and is due to genetics, affecting both men and women. In the U.S., the most common genetic mutation associated with hereditary ATTR-CM is found almost exclusively in people of African or Afro-Caribbean descent.

      It took more than 10 years to receive the right diagnosis despite knowing his family’s history of heart failure and experiencing heart-related symptoms, Chaney said.

     “It’s probably because African Americans don’t tell doctors everything that’s going on with them,” he said. “I’m guilty of it, too. They gave me some medicine but that didn’t really help much until they did further testing. It went beyond that. I actually had heart disease. You just have to tell your doctors everything.”

      Awareness of ATTR-CM among both patients and some doctors remains low, which in Chaney’s case and many others, could lead to delayed or misdiagnosis. But if symptoms seem unrelated it is best to visit a primary care doctor or an experienced cardiologist to discuss ATTR-CM, Chaney said.  

     In the United States, hereditary ATTR-CM occurs in African Americans (prevalent in approximately 1 in 25) and in older patients who may be misdiagnosed with high blood pressure-related heart disease.

     Chaney said he is “stressed to a degree” because he also has been spending time to get his family into testing mode since the disease is hereditary. His sister’s and daughter’s tests came back negative. He’s still waiting on his sons to go through the process.

     “They may not have it. But the disease is still present (in the family) and you could pass it down to your children,” Chaney said he has told members of his family. “I’m still going to press the issues to get them tested.”

While managing his ATTR-CM symptoms, Chaney spends time taking his grandchildren to NBA games in the Houston area. He also restores antique automobiles, participates in horseback riding, and is constantly testing his fishing skills. 

     His wife, Jackie Chaney, is now his primary caregiver and she is the one that calls the shots, he said.   

     “I do a lot of things within reason,” Chaney said. “I used to jump out of airplanes. But I don’t do that anymore. My wife monitors my condition, makes sure I see the doctor, and sees to it that I take my medication. I get a lot of help from a lot of people around here. I’m really enjoying my life.”

 

 

 

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Business

From Blueprint to Breakthrough: Tackling Affordable Housing in Oakland

Mercy Housing California and JPMorganChase help neighborhoods—and residents—thrive. Finding an affordable place to live remains a challenge for many as widespread housing shortages persist across the U.S. Rising home prices and high interest rates have made homeownership inaccess

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Photo courtesy JPMorganChase.

Mercy Housing California and JPMorganChase help neighborhoods—and residents—thrive.

Finding an affordable place to live remains a challenge for many as widespread housing shortages persist across the U.S. Rising home prices and high interest rates have made homeownership inaccessible to a large portion of the population. Meanwhile, as rental demand increases, the number of renters facing affordability challenges is rising.

The State of the Nation’s Housing 2025 by Harvard University’s Joint Center for Housing Studies reveals that cost burdens for renters reached another record high in 2023. Similarly, the JPMorganChase Institute reports that renter affordability is declining, forcing people to devote more of their take-home pay to housing costs. There is a growing need for affordable housing across the U.S., and that rings true here in Oakland.

To close that gap, it’s essential that all Oakland residents share in its growth, with housing options that accommodate a range of needs and budgets. For Mercy Housing California, this meant delivering a concrete solution to the local community, resulting in housing for individuals and families who otherwise might not have been able to live in the area.

For older adults living on fixed or limited incomes—including seniors who had been without a stable place to call home—The Eliza offers something that can feel out of reach in today’s housing market: a place to belong in the Oakland community where they’ve put down roots. Developed by Mercy Housing California with support from J.P. Morgan, The Eliza brings 97 new homes to seniors aged 62 and older, with 20 of those homes set aside for seniors who were formerly homeless. Here, “affordable” means rents are tied to what residents can actually pay so that a home stays within reach rather than consuming a household’s entire budget.

“As housing costs continue to rise across California, far too many older adults living on fixed incomes face the heartbreaking risk of displacement or homelessness, often for the first time later in life,” said Tiffany Bohee, President of Mercy Housing California. “Here, seniors can age in place independently, access onsite services tailored to their needs, and find a community where they can truly feel at home. Thanks to the commitment of partners like JPMorganChase, we’re helping ensure Oakland remains a place where seniors of all incomes can age with dignity, stability, and belonging.”

“We’re proud of the far-reaching impact this project will have. It reflects Mercy Housing California’s mission to uplift our communities and expands the supply of high-quality, affordable homes,” said James Vossoughi, Community Development Banking, J.P. Morgan. “Every additional housing unit matters—and increasing the number that are affordable is critical.”

A broader commitment to Oakland’s future

While The Eliza is foundational, the vibrancy of a community depends on much more. In Oakland, the firm provides banking services to more than 675,000 customers and works across sectors to expand economic opportunity. Over the last five years, JPMorganChase has invested $35 million in local nonprofit organizations, supported 61,600 small business clients and delivered financial health education to thousands of residents to broaden access to banking, financial health resources, homeownership and other wealth building tools.

“As we work with local stakeholders to expand housing options, JPMorganChase’s goal is to create inclusive economic opportunity for all,” said Dan Schrauth, Managing Director, J.P. Morgan Private Bank and Chair, Bay Area Market Leadership Team, JPMorganChase. “When our communities thrive, we all thrive.”

The journey to close the affordable housing gap continues, with industry leaders like Mercy Housing, Inc. finding a path forward to bring real solutions to the Oakland community.

Locally and nationally, this project reflects JPMorganChase’s American Dream Initiative, a commitment to scaling local housing solutions across the country—learn more at www.jpmorganchase.com/America.

You can also read more about what’s happening in the Bay Area at https://www.jpmorganchase.com/communities/sf-bay-area.

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Business

NPRC Scores First Advocacy Victory: David Shaw Finally Gets His Wish to ‘Go Home’

POST NEWS GROUP — The National Probate Reform Coalition (NPRC), formed by the Post Newspaper Group in January following years of reporting on alleged abuses within the probate court system, helped Beverly secure the return of her husband, along with the couple’s property and assets.

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Beverly and David Shaw were separated by a hospital after Beverly took David there to treat his dehydration. The hospital determined Beverly was not caring for David property and placed him under their guardianship. Courtesy photo.

For nearly four years, Beverly Shaw fought to bring her husband home.

She watched as David Shaw moved through three nursing homes, became increasingly sedated and repeatedly expressed his desire to return to his wife. Last week, that finally happened.

The National Probate Reform Coalition (NPRC), formed by the Post Newspaper Group in January following years of reporting on alleged abuses within the probate court system, helped Beverly secure the return of her husband, along with the couple’s property and assets.

For NPRC, the Shaw case represents its first major advocacy victory. For David, it means something much simpler: He finally got to go home.

In a letter to the court, Beverly raised serious concerns about her husband’s care at Riverview at the Park Nursing Home.

She alleged that David was frequently heavily sedated and questioned whether his medications were properly documented. She said an aide told her medications were sometimes administered without proper charting, although she acknowledged she had not independently verified that information.

Shaw also said she was unable to obtain David’s medical records and questioned medications he was receiving despite previous medical instructions following his 2023 stroke.

“I believe David has been subjected to abuse, neglect, and unnecessary chemical restraint,” Shaw wrote.

The allegations are Shaw’s account and have not been independently established. But they raise questions central to NPRC’s mission: Who is watching when a vulnerable person becomes subject to guardianship? Who is accountable when family members say they are ignored? And who makes sure the person under guardianship, not the professionals surrounding them, remains the priority?

“Please let me go home”

Perhaps the most compelling part of Shaw’s case was David’s own voice. Shaw told the court she possesses recordings in which David repeatedly expressed his desire to return home.

After 45 years of marriage and four years apart, Beverly argued that David deserved the opportunity to spend his remaining years at home with his wife, receiving individualized care.

NPRC responded with a “Request for Compassion” letter-writing campaign to Judge Thomas Inman, Associate Circuit judge for Ste. Genevieve County, Missouri. The coalition also helped Shaw pursue appropriate legal filings and engaged with her attorney to press for action.

The court ultimately returned David to Beverly’s custody and restored the couple’s property and assets.

“What we have here is the power of coalition,” said Alee Carrino, an NPRC planning committee member. “We applied pressure from all sides, and it worked.”

The victory comes during NPRC’s eighth month of organizing for probate reform. The coalition advocates for greater judicial and governmental oversight, court ombudsmen, mandatory mediation, transparency in probate billing and stronger protections for elders and disabled people.

The Shaw case sends a powerful message: Guardianship is supposed to protect vulnerable people, not permanently separate them from those who love and care for them.

David Shaw asked to go home. His wife fought to bring him home. NPRC supported her every step of the way, and this time, the system listened.

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Commentary

ESSAY: California Can Close Its Colorectal Cancer Gap

POST NEWS GROUP — The numbers are stark. From 2014 through 2018, the age-adjusted colorectal cancer incidence rate was 40.2 cases per 100,000 Black Californians, compared with 35.8 among non-Hispanic White Californians. The mortality rate was 25.3 deaths per 100,000 among Black Californians and 17.7 among White Californians—a 43% difference.

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Dr. Gracie Ann Dinkins, left, and Sydney Y.K. Brown, MA

Every breakthrough in cancer care carries a promise: earlier detection, better treatment and longer life. California has helped deliver that promise through world-class cancer centers, a statewide cancer registry and major public-health investments. Yet colorectal cancer still exposes a painful divide: Black Californians are more likely to develop the disease and far more likely to die from it than their White neighbors.

The numbers are stark. From 2014 through 2018, the age-adjusted colorectal cancer incidence rate was 40.2 cases per 100,000 Black Californians, compared with 35.8 among non-Hispanic White Californians. The mortality rate was 25.3 deaths per 100,000 among Black Californians and 17.7 among White Californians—a 43% difference. 

A later state analysis showed that the incidence gap remained in 2021, at 39.0 versus 35.0 cases per 100,000.

These differences should not be treated as an inevitable consequence of biology. The more revealing explanation lies in what happens—or fails to happen—across the cancer-care continuum: prevention, screening, diagnostic follow-up, treatment and surveillance after treatment.

Colorectal cancer is one of the few cancers that screening can sometimes prevent. Colonoscopy can find and remove precancerous polyps, while stool-based tests can identify people who need further evaluation. The U.S. Preventive Services Task Force recommends screening for average-risk adults from ages 45 through 75, with several acceptable options. But a screening test saves no one if it is never offered, never completed or not followed by a timely colonoscopy after an abnormal result.

California’s cancer-burden report shows both the urgency of the problem and a troubling data gap. Nearly six in 10 colorectal cancers were diagnosed at a regional or distant stage among both Black and White patients from 2009 through 2018. The racial difference in stage was not statistically significant. Yet, the registry report did not include screening information, so it could not show who was offered a test, who completed it or who received the necessary colonoscopy afterward. It also did not assess whether survivors completed recommended follow-up. California can count cancers and deaths, but it cannot yet see every missed opportunity that produced them.

The disparities become clearer after diagnosis. A California Cancer Registry study of nearly 27,000 people with stage I through III colorectal cancer found that Black patients had 39% higher odds of receiving less than guideline-recommended treatment and 78% higher odds of waiting more than 60 days for treatment than White patients. Neighborhood socioeconomic disadvantage explained part of the substandard treatment, but racial differences persisted even after researchers accounted for where patients lived.

Survival reflects the accumulation of these missed opportunities. Among Californians diagnosed from 2009 through 2013, five-year relative survival was 58.8% for Black patients and 65.1% for White patients. After researchers adjusted for age, insurance, neighborhood income, stage, chronic illness and other factors, the survival difference was no longer statistically significant. That does not make the gap less serious. It identifies much of it as potentially preventable: when access, timing and health conditions are unequal, survival will be unequal too.

California already has proof that a better system can work. Kaiser Permanente Northern California built an organized program that identified eligible patients, mailed annual home stool tests to those overdue, offered colonoscopy as an alternative, and tracked abnormal results through follow-up. Screening among Black members rose from about 40% in 2009 to 80% in 2019. Over the same period, their colorectal cancer death rate fell from 54.2 to 20.9 per 100,000, essentially eliminating the Black-White mortality gap within that health system.

The lesson is not that every Californian must join one health plan. It is that equity requires organized care rather than reliance on chance encounters. Mailed screening outreach, patient navigation and guaranteed follow-up colonoscopy should become standard across Medi-Cal, county health systems and community clinics. Health systems should publicly report screening completion; time from a positive stool test to colonoscopy; time from diagnosis to treatment; receipt of guideline-concordant therapy; and completion of post-treatment surveillance—each stratified by race, insurance, and neighborhood.

Transportation, paid time off, bowel-preparation costs, childcare and distrust are not side issues; they determine whether patients can complete care. Community organizations, churches, clinicians and public hospitals should help design outreach from the beginning, not merely deliver messages created elsewhere. Survivors should leave treatment with a clear surveillance plan, navigation support and reminders that do not disappear when active therapy ends.

Closing California’s colorectal cancer gap is achievable. The state has the tests, specialists, data systems and proof of concept. What it needs is the will to connect them. Success should be measured not only by how many cancers we treat, but by how many we prevent, how quickly we act and whether every Californian has an equal opportunity to survive.

About the Authors 

Gracie Ann E. Dinkins, MD, FACS, is a Clinical Assistant Professor of Surgery and Surgery Clerkship Director at the Charles R. Drew University College of Medicine, Department of Surgery. Her mission is to help realize the CDU vision: Excellent health and wellness for all in a world without health disparities.

Sydney Y. K. Brown, MA, is a medical student at the Charles R. Drew University College of Medicine whose work focuses on clinical research, community engagement, and health equity. She is committed to advancing equitable access to high-quality care and improving health outcomes in underserved communities.

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