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Vast Disparities in Treatment Separate Americans with HIV

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By, Barbara Feder Ostrov, Kaiser Health News

 

A major insurer said recently it would offer life insurance to HIV-positive people because of their rising life expectancies, prompting cheers from AIDS activists. But on the very same day, the nation’s top disease control official described an America falling far short in its fight against AIDS.

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It might seem a jarring disconnect — but it reflects very different realities dividing the estimated 1.2 million Americans living with HIV/AIDS.

 

While life expectancies are approaching the national norm among white, affluent gay men, about 66 percent of the 1.2 million people living with HIV/AIDS in the United States are not in treatment, imperiling their health and at risk for infecting others.

 

African-Americans, mostly gay or bisexual men, account for nearly half of the approximately 45,000 Americans infected with HIV each year. Both African-Americans and Latinos are less likely to remain in treatment than whites. Compared to white men, African American men were more than seven times and Latino men were almost twice as likely to die from HIV-related complications.

 

HIV/AIDS advocates and physicians say that despite the significant medical advances in treating the disease, many patients are being left behind because of their life circumstances. Groups that once held angry demonstrations against government agencies and pharmaceutical companies to speed access to affordable, life-saving HIV medications now emphasize the socioeconomic barriers that keep some people living with HIV from consistently obtaining and using those drugs to remain healthy.

 

“There is an extreme disparity when it comes to treating HIV and AIDS,” said Anthony Hayes, managing director of public affairs and policy for GMHC, formerly Gay Men’s Health Crisis.

 

“It’s critical, when we talk about ending the epidemic, to not just to talk about the science. These are people who are incredibly vulnerable as it relates to all aspects of society. In contrast, more affluent HIV positive people — specifically gay white men — are able to access care, they have jobs, they have homes, they have access to life’s basic necessities that many do not.

 

“It’s very hard to talk about HIV prevention with someone who is homeless or someone who isn’t sure where they’re going to find their next meal.”

 

It’s not a simple matter of financing care for those who can’t afford it. Treatment and social services are currently available for low-income and uninsured or underinsured patients under the Ryan White Act. Once long waiting lists for free HIV medications have virtually been eliminated. But basic survival – money to live, a place to sleep — often takes precedence over seeking help and closely managing a disease that can be symptom-free in its early stages, doctors say.

 

Loren Jones, 63, of Berkeley, Calif., was homeless when she was first diagnosed with HIV about 30 years ago. And for many years she wasn’t symptomatic, so her diagnosis was rarely at the top of her list of worries, Jones said. “It actually sinks to the bottom. HIV becomes another thing on your, like, to-do list.”

 

Jones eventually was able to find a government-subsidized studio apartment in Berkeley and qualify for Social Security disability benefits. She recently had a bout with eczema, a serious skin rash that can be a marker for the progression of HIV-related disease. Her blood pressure spiked, leading to discovery of kidney disease, a common complication of HIV.

 

With her health problems now coming to the fore, she is finally receiving HIV treatment.

 

Newer approaches to controlling HIV/AIDS focus on a “continuum of care,” from the very beginning. Federal health official are trying to track improvements or setbacks at every stage: testing, linking the newly diagnosed to care within three months, getting HIV-positive people to remain in treatment, prescribing them antiretroviral drugs, and suppressing HIV viral load – the amount of HIV in the blood – to a very low level.

 

People fall out of care at every stage, with minorities generally faring worse than whites. The goal is to keep them in treatment, not only for their sake but because research has shown that people with low or undetectable viral loads are far less likely to transmit the disease to others.

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New Protections for Ticket Buyers: Gov. Newsom Signs Assemblymember Isaac Bryan’s Bill

OAKLAND POST — Assembly Bill 1349 expands state regulation of original ticket sellers, resellers and online resale marketplaces. The law targets deceptive sales practices, ticket-buying software and speculative listings — tickets advertised for sale by sellers who do not possess them or have authorization to sell them.

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Assemblymember Isaac Bryan (D-Ladera Heights). File photo.

Gov. Gavin Newsom signed legislation on Sept. 27 authored by Assemblymember Isaac Bryan (D-Ladera Heights) that strengthens consumer protections for Californians purchasing tickets to concerts, sporting events and other live entertainment.

Assembly Bill 1349 expands state regulation of original ticket sellers, resellers and online resale marketplaces. The law targets deceptive sales practices, ticket-buying software and speculative listings — tickets advertised for sale by sellers who do not possess them or have authorization to sell them.

“Buying a ticket shouldn’t come with hidden risks or unfair practices,” Newsom wrote on social media after signing the measure.

Under AB 1349, ticket sellers are prohibited from listing tickets before they have been officially released unless they have authorization or a legally enforceable right to receive them. Online marketplaces must also take reasonable steps to prevent speculative ticket sales on their platforms.

The law prohibits sellers from using bots, multiple accounts, email addresses or internet protocol addresses to circumvent ticket limits, presale restrictions, electronic queues and other controls. It also bans websites and advertisements designed to mislead buyers into believing they are purchasing tickets from an authorized seller, venue or event organizer.

Sellers who violate certain provisions and fail to provide a promised ticket may be held liable for twice the ticket’s contracted price. Buyers may also recover nonrefundable expenses incurred while attempting to attend an event, along with reasonable attorney’s fees and court costs.

Pastor Tecoy Porter Sr., president of the National Action Network’s Sacramento chapter, said the law establishes needed accountability.

“Buying a ticket to a concert or show shouldn’t mean entering a marketplace where the rules are stacked against you. This year, we worked with a coalition of consumers, civil rights advocates, community groups, and businesses to make AB 1349 stronger. Consumers deserve enforceable rules that protect them. We thank Assemblymember Bryan for his leadership, and we will keep working to make ticketing fair for every Californian.”

Jose L. Barrera, national vice president for the Far West Region of the League of United Latin American Citizens, also praised the measure.

“Californian families deserve certain protections when they buy tickets. Assemblymember Bryan listened to communities across California and delivered a bill that puts fans first. We thank him and Governor Newsom for making it law.”

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Zakiya Jendayi Arrested, Locked Out of Home by Sheriff’s Deputies

OALAND POST — On Tuesday, deputies followed Jendayi as she left her residence of 13 years to file documents in her case at the Appellate Court. Deputies arrested her upon arrival and transported her to Santa Rita Jail.

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Court-appointed administrator Philip Campbell outside Zendayi’s home on Randolph Avenue in Oakland. Photo by Tanya Dennis.

Yesterday, more than 10 Alameda County Sheriff’s deputies arrived to take possession of Zakiya Jendayi’s home on behalf of a court-appointed administrator. Jendayi was arrested at the courthouse and transported to Santa Rita Jail around the same time.

Jendayi, who has been embroiled in a probate court battle to retain the inheritance bestowed on her by a longtime friend and colleague who passed away in 2013, had received a notice of eviction last month.

With help from neighbors, friends and clergy, she was able to fend off the eviction from 3614 Randolph Ave. in Oakland and even obtained a reprieve when her bid to file bankruptcy was approved by a county court.

But Philip Campbell, the court-appointed administrator, had already placed Jendayi’s home in his name in October 2025.

On Tuesday, deputies followed Jendayi when she left her residence of 13 years to go to the Appellate Court to file documents in her case. Deputies arrested her upon arrival and transported her to Santa Rita jail.

Undersheriff April Luckett-Fahini said Jendayi was arrested for “safety reasons.” At this time, it is unknown what charges were used for the arrest.

In Jendayi’s absence, Campbell came to her residence accompanied by deputies, had the property taped off with yellow crime tape, and had the locks changed.

 Afterward, Campbell requested a police escort to his car amid several angry neighbors who had been advocating that officials pause the eviction pending Jendayi’s appeal.

“Zakiya Jendayi is a respected Black elder in our community,” said Alameda County Supervisor Nikki Fortunato Bas, who has been working with Jendayi to prevent her eviction. “It’s outrageous that she was arrested.  There needs to be more justice and equity in our probate system.” 

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Ask California: Golden State Releases New AI Chatbot

Gov. Gavin Newsom introduced the prototype as part of the state’s broader effort to use artificial intelligence to make government services easier to access. The launch follows his March 2026 executive order directing state agencies to responsibly implement generative AI while protecting privacy, security and civil liberties.

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California has launched AskCA, a new artificial intelligence-powered chatbot designed to help residents find and navigate state and local government services through a single online platform.

Developed by the state’s Office of Data and Innovation, AskCA is designed around major life events rather than individual government agencies. Californians can use the tool to find information about finding a job, starting a business, accessing family services and recovering from disasters.

Gov. Gavin Newsom introduced the prototype as part of the state’s broader effort to use artificial intelligence to make government services easier to access. The launch follows his March 2026 executive order directing state agencies to responsibly implement generative AI while protecting privacy, security and civil liberties.

“When a Californian needs help, they shouldn’t have to become an expert in government to find it,” said Newsom. “We’re using the best technology California has to offer to make the government more efficient, effective, and more engaged.”

The state is now seeking Californians age 18 and older to participate in the pilot and help test and refine AskCA’s responses. Officials said subject matter experts across state governments are helping inform the chatbot’s answers, which are designed to draw from verified government sources and provide actionable information.

The prototype grew out of California’s response to the January 2025 Los Angeles wildfires. Early testing included more than 140 fire recovery leaders and Altadena wildfire survivors, a dozen job seekers and more than 100 general users.

Jeffery Marino, director of the Office of Data and Innovation, said the tool is intended to remove the need for residents to understand how government agencies are organized before they can get help.

“Californians should not have to understand how the government is organized just to get basic help,” Marino said.

AskCA’s technology will also be used in a new job-skills matching feature that the California Department of Human Resources plans to launch Sept. 30 on CalCareers. Job seekers will be able to upload a resume and receive potential matches to state job classifications.

The state said the CalCareers pilot will not store personal information or require users to have a CalCareers account. California plans to continue testing AskCA as officials evaluate its accuracy, performance and usefulness before expanding the system.

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