The Sickle Cell Consortium is a national organization dedicated to improving the lives of individuals with sickle cell disease through advocacy, education, and community collaboration. Over the past decade, the Consortium has transformed the landscape of sickle cell advocacy. It remains a trusted voice in the fight for better care and resources for sickle cell warriors.

The Sickle Cell Community Consortium will host its 9th Annual Leadership Summit & General Assembly, April 23-27, 2025, at the Atlanta Airport Marriott. This year’s theme, “Legacy of Leadership: Advancing Leadership for Impactful Change,” sets the tone for a transformative experience dedicated to elevating the voices and leadership of sickle cell patients, caregivers, and community-based organizations (CBOs).

This exclusive summit, sponsored in part by Pfizer and Vertex, continues to be the only national conference led by and for the sickle cell community. It is built on the foundation of the powerful principle: “Nothing for us, without us.” Each year, credentialed partners, including independent patient advocates (IPCAs), caregiver leaders, and grassroots CBOs, come together with researchers, industry professionals, and government leaders to create meaningful collaborations that inspire measurable change.

“This summit is more than a meeting—it’s a movement. It’s where grassroots leadership, lived experience, and institutional expertise come together to shape the future of sickle cell care and advocacy,” said SC3 Executive Leadership.

As part of its 10th anniversary, the ‘Consortium’ is spotlighting its most pressing initiatives, including the #WeAreTheCure project—a call to action for increasing organ and marrow donor registrations to save the lives of sickle cell warriors.

Two powerful stories underscore the urgency of this initiative: Tahirah, a young sickle cell warrior in need of a kidney donor match, and Dr. Lakeia Bailey, the Consortium’s Executive Director, actively seeking a bone marrow match. These stories highlight the life-saving potential of community support and donor registration.

Summit Highlights Include:

• Expert advocacy and best-practice training for CBO leaders
• Strategic policy discussions and collaborative sessions
• The Annual Business Meeting of the General Assembly
• Interactive workshops on funding, programming, and research partnerships
• Major updates on SC3 projects, initiatives, and national impact

Unlike traditional conferences, the Leadership Summit is intentionally hands-on and solution-focused, designed to equip attendees with practical tools and resources to return to their communities. It’s a space where grassroots leaders are not just included—they are centered.

General attendees, sponsors, researchers, and non-credentialed partners must register separately for the leadership summit at https://tinyurl.com/sc3leadershipEB25

For more information, visit: https://shorturl.at/Tv3uq

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