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Despite Challenges of Sickle Cell Disease, Cameron Thedford Inspires

BIRMINGHAM TIMES — When others seem to be having a bad day, Cameron Thedford, a 20-year-old University of Alabama at Birmingham (UAB) student majoring in physical therapy, is usually the one who can get them to feel better. The 2017 graduate of John Carroll High School in Birmingham was born with sickle cell disease in June 1999 with mild complications. As Cameron grew, he battled a bout of pneumonia and later suffered a stroke at age five. He spent a week in the intensive care unit as a result.

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Cameron Thedford (Photo by: birminghamtimes.com)

By Ameera Steward

When others seem to be having a bad day, Cameron Thedford, a 20-year-old University of Alabama at Birmingham (UAB) student majoring in physical therapy, is usually the one who can get them to feel better.

The 2017 graduate of John Carroll High School in Birmingham was born with sickle cell disease in June 1999 with mild complications. As Cameron grew, he battled a bout of pneumonia and later suffered a stroke at age five. He spent a week in the intensive care unit as a result.

And once a month since age eight, Cameron and his mother, Carmesha, have a clinic appointment at Children’s of Alabama for regular blood transfusions and now red blood cell exchange apheresis, a nonsurgical therapy that removes and replaces a patient’s red blood cells.

Cameron has also gotten blood infections from the apheresis which keeps him at the hospital longer. Cameron has had three including the most recent which kept him in the hospital for 13 days.

“Cameron has had his fair share of complications, but he has a quiet strength and a resilience that I don’t see in a lot of people,” said Kristen Osborn, his nurse practitioner for the past eight years. “He never let sickle cell hold him back or get in his way of accomplishing what he wants to accomplish.”

Cameron is already helping others who may feel down.

“There was a kid [in the hospital]…he was just really depressed about school and life because he was always sick and I just wanted to talk to him a little bit and cheered him up, we played Uno…and just talked and he said he felt better afterwards,” Cameron said.

His mother believes that her son would like to work one day with children. “I can relate to some of the stuff they might go through so I can just tell them everything is alright,” said Cameron, who likes to play basketball, hang out with his friends and 16-year-old brother, Dominic Hudson Jr.

After suffering a stroke at age five, Cameron spent a week in the intensive care unit.

“That was really scary,” said Carmesha, who went on to recall Cameron’s subsequent liver biopsies, gallstone removal and numerous other procedures. “Cameron doesn’t like to complain about anything. He’s always smiling, always happy. He never feels down because of his illness.”

Both Carmesha and Cameron credit their optimism to their Children’s care team, specifically Osborn and pediatric hematologist-oncologist Thomas Howard, M.D. “Up here they do the best they can to make you feel better. They look out for you,” said Cameron.

After his stroke his mother didn’t know how it would affect him.

“It didn’t affect his body physically, but the doctor explained because of the type of stroke he had it could affect his thinking ability . . . that would affect his school studies,” said Carmesha. “When I found that out I started giving him tutoring, in school, outside of school and it really helped . . . That makes him work even harder.”

Cameron began blood transfusions in 2006 at Children’s of Alabama which involves doctors or nurses going through the chest to take blood and give him blood simultaneously. He receives these transfusions once every four weeks, which can take up to a full day.

He’s also had seizures which have prevented him from driving for six months but he will resume on Sept. 13 and he’s excited.

Strength & Positivity

“Whenever I’m in the hospital I just know I’m going to get better because I feel like they’re going to help me no matter what, they’re going to do their best and I just always think positively,” said Cameron. “I don’t like anybody to know I’m hurting because I say that I’m real strong about that . . . other than that, you wouldn’t really know because I’ll try to deal with it. I know pain is temporary and I’m going to get better.”

Osborn said she admires his strength because many people who have a chronic illness and complications requiring treatment once a month can become depressed “because they don’t want to live with the disease, they want to ignore it and pretend like it’s not there.”

“Cameron has kind of faced his head on and always dealt with things as they come and I just think that…it’s his strength for not letting  this disease keep him from accomplishing the things that he wants to accomplish in life,” Osborn said. “He is a very kind person as well. He always has a smile on his face and he is always very polite and just easy to be with.”

Cameron said his mom is a big part of how he keeps his spirits up, but she said he is the one who keeps her calm when he’s sick.

“He’ll tell me that he’s going to be ok, for me not to worry … he’ll tell me everything is going to be ok…’the doctor is going to take care of me. I’ll be good,’” said Carmesha. “I think so far I’ve done well considering he’s 20 years old, he’s been through a lot of rough stages in his life and as a single parent it can get hard but he never doubts anything, he never feels discouraged about anything, that’s why I think he’s done really well.”

Cameron said he also stays strong and positive for his brother as well.

“I don’t let sickle cell or anything hold me back, I don’t let anything hold me back. if I put my mind to something, I’m going to do it,” he said. “I don’t limit myself to anything. I feel like I can do it all.”

This article originally appeared in The Birmingham Times.

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IN MEMORIAM: Ramona Edelin, Influential Activist and Education Advocate, Dies at 78

NNPA NEWSWIRE — Born on September 4, 1945, in Los Angeles, California, activist Ramona Edelin’s early years were marked by a commitment to education and social justice. According to her HistoryMakers biography, after graduating from Fisk University with a Bachelor’s degree in 1967, she pursued further studies at the University of East Anglia in England. She earned her master’s degree before completing her Ph.D. at Boston University in 1981.
The post IN MEMORIAM: Ramona Edelin, Influential Activist and Education Advocate, Dies at 78 first appeared on BlackPressUSA.

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By Stacy M. Brown, NNPA Newswire Senior National Correspondent
@StacyBrownMedia

Once upon a time, Black Americans were simply known as colored people, or Negroes. That is until Ramona Edelin came along. The activist, renowned for her pivotal roles in advancing civil rights, education reform, and community empowerment, died at her D.C. residence last month at the age of 78. Her death, finally confirmed this week by Barnaby Towns, a communications strategist who collaborated with Dr. Edelin, was attributed to cancer.

Born on September 4, 1945, in Los Angeles, California, Edelin’s early years were marked by a commitment to education and social justice. According to her HistoryMakers biography, after graduating from Fisk University with a Bachelor’s degree in 1967, she pursued further studies at the University of East Anglia in England. She earned her master’s degree before completing her Ph.D. at Boston University in 1981.

Edelin’s contributions to academia and activism were manifold. She was pivotal in popularizing the term “African American” alongside Rev. Jesse L. Jackson in the late 1980s.

Jackson had announced the preference for “African American,” speaking for summit organizers that included Dr. Edelin. “Just as we were called Colored, but were not that, and then Negro, but not that, to be called Black is just as baseless,” he said, adding that “African American” “has cultural integrity” and “puts us in our proper historical context.”

Later, Edelin told Ebony magazine, “Calling ourselves African Americans is the first step in the cultural offensive,” while linking the name change to a “cultural renaissance” in which Black Americans reconnected with their history and heritage.

“Who are we if we don’t acknowledge our motherland?” she asked later. “When a child in a ghetto calls himself African American, immediately he’s international. You’ve taken him from the ghetto and put him on the globe.”

The HistoryMakers bio noted that Edelin’s academic pursuits led her to found and chair the Department of African American Studies at Northeastern University, where she established herself as a leading voice.

Transitioning from academia to advocacy, Edelin joined the National Urban Coalition in 1977, eventually ascending to president and CEO. During her tenure, she spearheaded initiatives such as the “Say Yes to a Youngster’s Future” program, which provided crucial support in math, science, and technology to youth and teachers of color in urban areas. Her biography noted that Edelin’s efforts extended nationwide through partnerships with organizations like the National Science Foundation and the United States Department of Education.

President Bill Clinton recognized Edelin’s expertise by appointing her to the Presidential Board on Historically Black Colleges and Universities in 1998. She also co-founded and served as treasurer of the Black Leadership Forum, solidifying her standing as a respected leader in African American communities.

Beyond her professional achievements, Edelin dedicated herself to numerous boards and committees, including chairing the District of Columbia Educational Goals 2000 Panel and contributing to the Federal Advisory Committee for the Black Community Crusade for Children.

Throughout her life, Edelin received widespread recognition for her contributions. Ebony magazine honored her as one of the 100 Most Influential Black Americans, and she received prestigious awards such as the Southern Christian Leadership Award for Progressive Leadership and the IBM Community Executive Program Award.

The post IN MEMORIAM: Ramona Edelin, Influential Activist and Education Advocate, Dies at 78 first appeared on BlackPressUSA.

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Tennessee State University Board Disbanded by MAGA Loyalists as Assault on DE&I Continues

NNPA NEWSWIRE — Recent legislative actions in Tennessee, such as repealing police reform measures enacted after the killing of Tyre Nichols, underscore a troubling trend of undermining local control and perpetuating racist agendas. The new law preventing local governments from restricting police officers’ authority disregards community efforts to address systemic issues of police violence and racial profiling.
The post Tennessee State University Board Disbanded by MAGA Loyalists as Assault on DE&I Continues first appeared on BlackPressUSA.

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By Stacy M. Brown, NNPA Newswire Senior National Correspondent
@StacyBrownMedia

Tennessee State University (TSU), the state’s only public historically Black college and university (HBCU), faces a tumultuous future as Gov. Bill Lee dissolved its board, a move supported by racist conservatives and MAGA Republicans in the Tennessee General Assembly, who follow the lead of the twice-impeached, four-times indicted, alleged sexual predator former President Donald Trump. Educators and others have denounced the move as an attack on diversity, equity, and inclusion (DE&I) and a grave setback for higher education.

Critics argue that TSU’s purported financial mismanagement is a manufactured crisis rooted in decades of underinvestment by the state government. They’ve noted that it continues a trend by conservatives and the racist MAGA movement to eliminate opportunities for Blacks in education, corporate America, and the public sector.

Gevin Reynolds, a former speechwriter for Vice President Kamala Harris, emphasizes in an op-ed that TSU’s financial difficulties are not the result of university leadership because a recent audit found no evidence of fraud or malfeasance.

Reynolds noted that the disbanding of TSU’s board is not an isolated incident but part of a broader assault on DE&I initiatives nationwide. Ten states, including Tennessee, have enacted laws banning DE&I policies on college campuses, while governors appointing MAGA loyalists to university trustee positions further undermine efforts to promote inclusivity and equality.

Moreover, recent legislative actions in Tennessee, such as repealing police reform measures enacted after the killing of Tyre Nichols, underscore a troubling trend of undermining local control and perpetuating racist agendas. The new law preventing local governments from restricting police officers’ authority disregards community efforts to address systemic issues of police violence and racial profiling.

The actions echo historical efforts to suppress Black progress, reminiscent of the violent backlash against gains made during the Reconstruction era. President Joe Biden warned during an appearance in New York last month that Trump desires to bring the nation back to the 18th and 19th centuries – in other words, to see, among other things, African Americans back in the chains of slavery, women subservient to men without any say over their bodies, and all voting rights restricted to white men.

The parallels are stark, with white supremacist ideologies used to justify attacks on Black institutions and disenfranchise marginalized communities, Reynolds argued.

In response to these challenges, advocates stress the urgency of collective action to defend democracy and combat systemic racism. Understanding that attacks on institutions like TSU are symptomatic of broader threats to democratic norms, they call for increased civic engagement and voting at all levels of government.

The actions of people dedicated to upholding the principles of inclusivity, equity, and justice for all will determine the outcome of the ongoing fight for democracy, Reynolds noted. “We are in a war for our democracy, one whose outcome will be determined by every line on every ballot at every precinct,” he stated.

The post Tennessee State University Board Disbanded by MAGA Loyalists as Assault on DE&I Continues first appeared on BlackPressUSA.

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Braxton Haulcy and the Expansion of Walker|West Music Academy

May 24, 2023 – Walker West Music Academy gets an early start on expansion. Join us for a Wednesday episode of The …
The post Braxton Haulcy and the Expansion of Walker|West Music Academy first appeared on BlackPressUSA.

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May 24, 2023 – Walker West Music Academy gets an early start on expansion. Join us for a Wednesday episode of The …

The post Braxton Haulcy and the Expansion of Walker|West Music Academy first appeared on BlackPressUSA.

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